Division of Health Research, International Observatory on End of Life Care, Lancaster University, Lancaster, United Kingdom; School of Interdisciplinary Studies, University of Glasgow, Dumfries, Scotland, United Kingdom.
Division of Health Research, International Observatory on End of Life Care, Lancaster University, Lancaster, United Kingdom.
J Pain Symptom Manage. 2020 Mar;59(3):679-686.e1. doi: 10.1016/j.jpainsymman.2019.10.021. Epub 2019 Nov 1.
Many jurisdictions around the world have passed medical aid in dying (MAID) laws allowing competent eligible individuals facing life-limiting illness to self-administer prescribed medication to control timing of death. These laws do not prevent some patients who are receiving hospice services from dying by suicide without assistance.
To explore hospice professionals' experiences of patients who die by suicide or intentionally hasten death with or without legal assistance in an area where there is legalized MAID.
Semistructured in-depth qualitative interviews were conducted with 21 home hospice professionals (seven nurses, seven social workers, four physicians, and three chaplains). Thematic analysis was carried out to analyze the data.
Three primary themes were identified from the interviews: 1) dealing with and differentiating between hastened death and suicide, 2) MAID access and affordability, and 3) how patients have hastened their own deaths. Analysis of these data indicates that there are some patients receiving hospice services who die by suicide because they are not eligible for, have no knowledge of, or lack access to legalized MAID. Hospice professionals do not consistently identify patients' deaths as suicide when they are self-inflicted and sometimes view these deaths as justified.
Suicide and hastened deaths continue to be an unexamined cause of death for some home hospice patients who may have requested MAID. Open communication and increased education and training is needed for palliative care professionals regarding legal options, issues of suicide, and suicide assessment.
世界上许多司法管辖区都通过了安乐死(MAID)法律,允许面临绝症的合格个人自行服用规定的药物来控制死亡时间。这些法律并不能阻止一些正在接受临终关怀服务的患者在没有协助的情况下自杀死亡。
探讨在一个 MAID 合法化的地区,临终关怀专业人员在有或没有法律协助的情况下,对那些自杀或故意加速死亡的患者的经历。
对 21 名家庭临终关怀专业人员(7 名护士、7 名社会工作者、4 名医生和 3 名牧师)进行了半结构化深入定性访谈。采用主题分析方法对数据进行分析。
访谈中确定了三个主要主题:1)处理和区分加速死亡和自杀,2)MAID 的可及性和可负担性,3)患者如何加速自己的死亡。对这些数据的分析表明,一些接受临终关怀服务的患者自杀是因为他们不符合、不了解或无法获得合法化的 MAID。临终关怀专业人员并不总是将他们是自杀的患者的死亡认定为自杀,有时他们认为这些死亡是合理的。
对于一些可能要求 MAID 的家庭临终关怀患者来说,自杀和加速死亡仍然是一个未被检查的死因。姑息治疗专业人员需要就合法选择、自杀问题和自杀评估进行开放的沟通,并增加教育和培训。