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特殊医疗需求青少年接受的医疗过渡支持的差异。

Disparities in healthcare transition support received by adolescents with special healthcare needs.

机构信息

Department of Industrial and Organizational Psychology, FIU Embrace, BRAINN Lab, Florida International University, Miami, Florida.

Department of Health Promotion and Disease Prevention, FIU Embrace, BRAINN Lab, Robert Stempel College of Public Health and Social Work, Florida International University, Miami, Florida.

出版信息

J Appl Res Intellect Disabil. 2020 Mar;33(2):180-192. doi: 10.1111/jar.12658. Epub 2019 Nov 6.

Abstract

BACKGROUND

Transitioning to adult healthcare systems can be challenging, especially if left unaddressed for adolescents with special healthcare needs (ASHCN), such as those with autism spectrum disorder and attention-deficit/ hyperactivity disorder. While there is evidence of disparities between different demographics regarding general healthcare services, research on healthcare-specific transition planning is lacking. Thus, there is a critical need to continually investigate these disparities.

METHOD

Using nationally representative data from the 2016 National Survey for Children's Health, several analyses were conducted to examine doctor-patient interactions and discussions about transitioning to adult health care. Accounting for demographic and diagnostic indicators allowed for the assessment of disparities.

RESULTS

Findings revealed significant disparities between age, disability and race relative to various healthcare transition support services.

CONCLUSIONS

Findings provide valuable information that can inform the development of training programmes for healthcare providers, influence policy, modify procedures and interventions and highlight the need for increased advocacy for ASHCN.

摘要

背景

对于有特殊医疗需求的青少年(ASHCN),如自闭症谱系障碍和注意力缺陷/多动障碍患者,过渡到成人医疗保健系统可能具有挑战性,尤其是如果不加以解决的话。虽然关于一般医疗服务,不同人口统计学之间存在差异的证据,但缺乏关于特定医疗保健过渡规划的研究。因此,需要不断调查这些差异。

方法

利用 2016 年全国儿童健康调查的全国代表性数据,进行了几项分析,以检查医患互动和关于过渡到成人保健的讨论。考虑到人口统计学和诊断指标,可以评估差异。

结果

研究结果显示,在各种医疗过渡支持服务方面,年龄、残疾和种族之间存在显著差异。

结论

这些发现提供了有价值的信息,可以为医疗保健提供者的培训计划提供信息,影响政策,修改程序和干预措施,并强调需要增加对 ASHCN 的宣传。

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