Lea Sarah, Martins Ana, Morgan Sue, Cargill Jamie, Taylor Rachel M, Fern Lorna A
Cancer Division, University College London Hospitals NHS Foundation Trust, London, UK.
Teenage Cancer Trust Unit, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
Adolesc Health Med Ther. 2019 Aug 29;10:103-116. doi: 10.2147/AHMT.S211142. eCollection 2019.
The internet is integral to young people, providing round-the-clock access to information and support. Young people with cancer report searching for online information and support. What they search for and why varies across their timeline and is mainly driven by negative emotion. We sought to understand how health care professionals (HCPs) perceived online information and support for young people with cancer.
Semi-structured interviews with eight HCPs across the UK informed the development of a survey, completed by 38 HCPs. Framework analysis was used to identify key themes and the survey was analyzed descriptively.
Seven themes emerged as integral to HCP's perceptions of online information and support, these included: views about young people's use of online resources; how needs change along the cancer timeline; different platforms where HCPs refer young people to online; whether young people's online needs are currently met; recognition of the emotional relationship between young people and the internet; barriers and concerns when referring young people to online resources; and strategies used in practice.
Professionals play an important role in signposting young people to online resources, where they are confident about the accuracy and delivery of information. The biggest perceived barrier to facilitating online access was the cost to the NHS, and most concerning factor for HCPs was keeping young people safe online. There is a need to develop online resources specific for young people on psychosocial topics beyond treatment to support young people and HCPs through this period.
互联网对年轻人至关重要，它提供了全天候获取信息和支持的途径。患有癌症的年轻人报告称会搜索在线信息并寻求支持。他们搜索的内容及原因在其患病过程中各不相同，且主要由负面情绪驱动。我们试图了解医疗保健专业人员（HCPs）如何看待针对患有癌症的年轻人的在线信息和支持。
对英国的八名HCPs进行了半结构式访谈，以此为基础设计了一项调查，由38名HCPs完成。采用框架分析法确定关键主题，并对调查进行描述性分析。
七个主题成为HCPs对在线信息和支持看法的核心，这些主题包括：对年轻人使用在线资源的看法；需求如何随癌症病程变化；HCPs推荐年轻人使用的不同在线平台；年轻人当前的在线需求是否得到满足；对年轻人与互联网之间情感关系的认识；向年轻人推荐在线资源时的障碍和担忧；以及实际使用的策略。
专业人员在为年轻人指明在线资源方面发挥着重要作用，他们对这些信息的准确性和提供方式充满信心。促进在线获取的最大障碍被认为是对国民医疗服务体系（NHS）的成本，而HCPs最担心的因素是确保年轻人在网上的安全。有必要开发针对年轻人的、关于治疗以外心理社会主题的在线资源，以在这段时期支持年轻人和HCPs。
