Department of Communication, University of Cincinnati, Cincinnati, OH, USA.
Department of Communication Sciences and Disorders, University of Cincinnati, Cincinnati, OH, USA.
Patient Educ Couns. 2020 Mar;103(3):530-536. doi: 10.1016/j.pec.2019.10.009. Epub 2019 Oct 31.
To understand the communication and social challenges that individuals with SSD face post diagnosis.
Fifty-two single-sided deaf patients from all over the world participated in semi-structured interviews. Interviews were digitally recorded, transcribed verbatim, and coded using a thematic analysis approach.
Patients with single sided deafness identified challenges including: increased reliance on family members, decreased sense of autonomy, communication quality changes with family members, information discrepancy across family members and various emotional responses, conflicting information from interactions with multiple medical professionals, and lack of knowledge regarding what to anticipate post diagnosis.
This study provides insights into patients' perspectives around single-sided deafness and its challenges, and the various health care approaches (e.g., patient- and family-centered care, third party disability, patient navigation) that could be implemented post diagnosis to decrease negative experiences and outcomes associated with SSD.
This study has practical implications for improving our understanding of what single-sided deaf patients need and for health professionals to offer better care to current and future populations impacted by single-sided deafness.
了解 SSD 患者确诊后的沟通和社交挑战。
来自世界各地的 52 名单侧聋患者参与了半结构化访谈。访谈进行了数字录音、逐字转录，并使用主题分析方法进行了编码。
单侧聋患者确定了以下挑战：对家庭成员的依赖增加、自主性降低、与家庭成员的沟通质量变化、家庭成员之间的信息差异以及各种情绪反应、与多位医疗专业人员的互动中存在冲突信息，以及对诊断后预期的了解不足。
这项研究深入了解了患者对单侧聋及其挑战的看法，以及各种医疗保健方法（例如，以患者和家庭为中心的护理、第三方残疾、患者导航）可以在诊断后实施，以减少与 SSD 相关的负面体验和结果。
本研究对改善我们对单侧聋患者需求的理解以及为卫生专业人员为受单侧聋影响的当前和未来人群提供更好的护理具有实际意义。
