Faculty of Physical Education and Health in Biała Podlaska, Józef Piłsudski University of Physical Education, Warsaw, Poland
Faculty of Physical Education and Health in Biała Podlaska, Józef Piłsudski University of Physical Education, Warsaw, Poland.
BMJ Open. 2019 Nov 21;9(11):e032865. doi: 10.1136/bmjopen-2019-032865.
Adolescent idiopathic scoliosis, the diagnosis and management of this condition, may lead to poorer body image and diminished psychosocial functioning. Furthermore, treatment, especially bracing and surgery as well as screening, remain controversial and debated, with an unclear evidence base. Personal experiences in terms of issues such as person-centred care, shared decision making, and patient and public involvement, are contemporarily recognised as highly valued. Nonetheless, people's experiences related to adolescent idiopathic scoliosis is an issue underrepresented in current systematic reviews and systematically developed recommendations. There appears a substantial imbalance between a vast amount of biomedical research reports, and sporadic biopsychosocial publications in this field. The objective of this planned scoping review is to explore and map the available evidence from various sources to address a broad question of what is known about experiences of all those touched, directly and indirectly, by the problem of adolescent idiopathic scoliosis.
We based our protocol on the Joanna Briggs Institute's scoping review method, including the Population - Concept - Context framework, to formulate the objectives, research questions, eligibility criteria and conduct characteristics of the study. We will consider any primary study designs, research synthesis reports, as well as narrative reviews and opinion pieces. We will not restrict eligible publications to English language. Search and selection processes will include academic and grey literature searches using multiple electronic databases, search engines and websites, hand searches, and contacting the authors. We will use a customised data charting table and present a narrative synthesis of the results.
Scoping review is a secondary study, aiming at synthesising data from publicly available publications, hence it does not require ethical approval. We will submit the report to a peer-reviewed journal and disseminate it among professionals involved in scoliosis management, guideline and recommendation development, and policymaking.
青少年特发性脊柱侧凸，对这种疾病的诊断和管理可能会导致较差的身体形象和降低的社会心理功能。此外，治疗，特别是支具和手术以及筛查，仍然存在争议和争论，证据基础不明确。在以以人为中心的护理、共同决策以及患者和公众参与等问题为代表的个人经历方面，目前被认为是非常有价值的。尽管如此，人们在青少年特发性脊柱侧凸方面的经历在当前的系统评价和系统开发的建议中是一个代表性不足的问题。在这个领域，大量的生物医学研究报告与零星的生物心理社会出版物之间存在着巨大的不平衡。本计划的范围综述的目的是探索和绘制来自各种来源的现有证据，以解决一个广泛的问题，即直接和间接受到青少年特发性脊柱侧凸问题影响的所有人的经历都有哪些。
我们的方案基于乔安娜·布里格斯研究所的范围综述方法，包括人口-概念-背景框架，以制定研究的目标、研究问题、纳入标准和研究特征。我们将考虑任何主要的研究设计、研究综合报告，以及叙述性综述和观点文章。我们不会将合格的出版物仅限于英语语言。搜索和选择过程将包括使用多个电子数据库、搜索引擎和网站、手工搜索以及联系作者的学术和灰色文献搜索。我们将使用定制的数据图表表，并对结果进行叙述性综合。
范围综述是一种二次研究，旨在综合来自公开出版物的数据，因此不需要伦理批准。我们将把报告提交给同行评议的期刊，并在参与脊柱侧凸管理、指南和建议制定以及决策制定的专业人员中传播。
