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芬兰脑瘫儿童功能状况分析:多专业家庭会议分析。

Profiles of functioning of children with cerebral palsy in Finland: analysis of multi-professional family meetings.

机构信息

Institution of Health and Welfare, Arcada University of Applied Sciences, Helsinki, Finland.

Centre for Learning and Consulting, Valteri, Tervaväylä, Oulu, Finland.

出版信息

Disabil Rehabil. 2021 Jul;43(14):2024-2030. doi: 10.1080/09638288.2019.1692080. Epub 2019 Nov 22.

Abstract

PURPOSE

To explore what aspects of and how the child's functioning are discussed during a multi-professional team meeting when planning goals and interventions for rehabilitation.

MATERIALS AND METHODS

Multiprofessional rehabilitation meetings were videotaped, the discussions transcribed and all content related to the child's function was linked to the International Classification of Functioning, Disability and Health comprehensive Core Set for children with cerebral palsy.

RESULTS

Thirteen families gave their informed consent to participate. In nine meetings the child was present and one or two parents attended all meetings. The mean age of the children was 10 years (3-17 years). Functioning was described as wide-ranging and covered most components of the International Classification of Functioning, Disability and Health. Body structures were mentioned rarely, and of body functions, musculoskeletal functions were most commonly discussed. The focus was on activities and participation, the most discussed aspects being learning, applying knowledge and mobility.

CONCLUSIONS

The results showed that both children and their parents were involved when rehabilitation was planned. The comprehensive ICF Core Set for children and young people with CP was in this study used to analyze the areas of functioning discussed, but could also be useful in clinical practice to identify relevant areas of functioning.IMPLICATIONS FOR REHABILITATIONIdentifying areas of functioning facilitate communication among families and multi-disciplinary professionals during rehabilitation team meetings.Important areas of participation are overlooked during intervention planning meetings, which could be improved using ICF-based tools.The comprehensive ICF Core Set for cerebral palsy is a useful framework to identify areas of functioning in Finland.

摘要

目的

探讨在为康复制定目标和干预措施时,多专业团队会议讨论儿童哪些方面的功能以及如何讨论儿童的功能。

材料和方法

对多专业康复会议进行录像,对讨论内容进行转录,并将与儿童功能相关的所有内容与脑瘫儿童国际功能、残疾和健康分类综合核心分类集联系起来。

结果

13 个家庭同意参与。在 9 次会议中,孩子在场,1 到 2 名家长参加了所有会议。儿童的平均年龄为 10 岁(3-17 岁)。功能描述范围广泛,涵盖了国际功能、残疾和健康分类的大多数组成部分。身体结构很少被提及,在身体功能中,肌肉骨骼功能是最常被讨论的。重点是活动和参与,讨论最多的方面是学习、应用知识和移动性。

结论

结果表明,在进行康复计划时,儿童及其父母都参与其中。本研究使用脑瘫儿童和青少年综合国际功能、残疾和健康核心分类集来分析讨论的功能领域,但也可以在临床实践中使用基于 ICF 的工具来确定相关的功能领域。

对康复的启示

确定功能领域有助于在康复团队会议期间促进家庭和多学科专业人员之间的沟通。在干预计划会议中,参与的重要领域被忽视了,使用 ICF 为基础的工具可以改进这一点。脑瘫综合国际功能、残疾和健康核心分类集是芬兰识别功能领域的有用框架。

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