Huynh Minh N Q, Hicks Katie E, Malic Claudia
Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Division of Plastic Surgery, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, Ontario, Canada.
Plast Surg (Oakv). 2019 Nov;27(4):325-333. doi: 10.1177/2292550319880911. Epub 2019 Oct 23.
This study aims to assess the quality and readability of Internet-based patient resources for vascular tumours in order to understand which areas require improvement.
A World Wide Web search was performed, in addition to a literature review using PubMed, Ovid MEDLINE, and EMBASE. Any material that contained information on vascular tumours pertaining to patient education was included. We evaluated resources with DISCERN and Flesch Reading Ease scores when applicable. The language of publication was restricted to English and French. This review was registered with PROSPERO (CRD42018087885).
A total of 117 online resources were screened, with 73 resources included in the final analysis. The overall DISCERN rating for the patient resources was 1.8 (0.8). The majority of online resources failed to depict the entire spectrum of benign vascular tumours. The mean Flesch score was 36 (19), which translates to a college-level readability.
The majority of resources were not adequate or comprehensive and were written at a much higher level than the average reader would be expected to comprehend.
本研究旨在评估基于互联网的血管肿瘤患者资源的质量和可读性，以了解哪些方面需要改进。
除了使用PubMed、Ovid MEDLINE和EMBASE进行文献综述外，还进行了万维网搜索。纳入任何包含与患者教育相关的血管肿瘤信息的材料。适用时，我们用DISCERN和弗莱什易读性分数评估资源。出版物语言限于英语和法语。本综述已在PROSPERO（CRD42018087885）注册。
共筛选了117个在线资源，最终分析纳入73个资源。患者资源的总体DISCERN评分为1.8（0.8）。大多数在线资源未能描述良性血管肿瘤的全貌。平均弗莱什分数为36（19），相当于大学水平的可读性。
大多数资源不充分或不全面，其撰写水平远远高于普通读者的理解能力。
