Western Australian Centre for Rural Health, The University of Western Australia, 35 Stirling Highway, Perth 6009, Western Australia, Australia.
School of Population and Global Health, The University of Western Australia, 35 Stirling Highway, Perth 6009, Western Australia, Australia.
Int J Environ Res Public Health. 2019 Nov 22;16(23):4643. doi: 10.3390/ijerph16234643.
Health research is important for innovation and assessment of health status and health interventions, and maintaining a strong, engaged cohort of rural health researchers is essential for the ongoing improvement of the health of rural populations. Ethical guidelines and processes ensure research is undertaken in a way that protects and, where possible, empowers participants. We set out to systematically examine and document the challenges posed by ethics and governance processes for rural health researchers in Western Australia (WA) and the impact on the research undertaken. In this qualitative study, fifteen WA-based rural health researchers were interviewed. The identified challenges included inefficient systems, gatekeeping, apparent resistance to research and the lack of research experience of those involved in approval processes. For researchers seeking to conduct studies to improve rural and Aboriginal health, extended delays in approvals can hold up and impede research, ultimately changing the nature of the research undertaken and constraining the willingness of practitioners and researchers to undertake health research. Unwieldy ethics processes were seen to have a particularly onerous impact on rural research pertaining to service delivery, multiple sites, and research involving Aboriginal people, impeding innovation and inquiry in areas where it is much needed.
健康研究对于创新和评估健康状况和健康干预措施至关重要,而保持一支强大、积极参与的农村健康研究人员队伍对于不断改善农村人口的健康状况至关重要。伦理准则和程序确保研究以保护和在可能的情况下增强参与者能力的方式进行。我们旨在系统地审查和记录西澳大利亚州(WA)农村健康研究人员面临的伦理和治理过程带来的挑战,以及这些挑战对所进行研究的影响。在这项定性研究中,对 15 名 WA 农村健康研究人员进行了采访。确定的挑战包括效率低下的系统、把关、对研究的明显抵制以及参与审批过程的人缺乏研究经验。对于那些寻求开展研究以改善农村和原住民健康的研究人员来说,审批的长期延迟可能会阻碍研究,最终改变所进行研究的性质,并限制从业者和研究人员开展健康研究的意愿。繁琐的伦理程序对涉及服务提供、多个地点和涉及原住民的研究的农村研究产生了特别繁重的影响,阻碍了在急需的领域进行创新和探究。