Slater Morgan, Green Michael E, Shah Baiju, Khan Shahriar, Jones Carmen R, Sutherland Roseanne, Jacklin Kristen, Walker Jennifer D
Department of Family Medicine (Slater, Green) and ICES Queen's (Slater, Green, Khan), Queen's University, Kingston, Ont.; Department of Medicine (Shah), University of Toronto; ICES (Shah, Walker); Chiefs of Ontario (Jones, Sutherland), Toronto, Ont.; Memory Keepers Medical Discovery Team (Jacklin), Department of Family Medicine and Biobehavioral Health, University of Minnesota Medical School, Duluth, Minn.; School of Rural and Northern Health (Walker), Laurentian University, Sudbury, Ont.
CMAJ Open. 2019 Nov 24;7(4):E680-E688. doi: 10.9778/cmajo.20190096. Print 2019 Oct-Dec.
To improve diabetes care, First Nations leaders and others need access to population-level health data. We provide details of the collaborative methods we used to describe the prevalence and incidence of diabetes in First Nations people in Ontario and present demographic data for this population compared to the rest of the Ontario population.
To identify the population of First Nations people and other people in Ontario, we created annual cohorts of the Ontario population for each year between Apr. 1, 1995, and Mar. 31, 2015. Through a partnership between First Nations and academic researchers, we linked provincial population-based health administrative data stored at ICES with the Indian Register, which identifies all Status First Nations people. Our collaborative process was guided by the First Nations principles of ownership, control, access and possession (OCAP).
Demographic characteristics for the 2014/15 cohort ( = 13 406 684) are presented here. The cohort includes 158 241 Status First Nations people and 13 248 443 other people living in Ontario. Using postal codes, we were able to identify virtually all (99.9%) First Nations people in Ontario as living in ( = 55 311) or outside ( =102 889) a First Nations community. First Nations people were younger and more likely to live in semiurban or rural areas than the rest of Ontario's population.
The collaborative methodology used in this study is applicable to many jurisdictions working with Indigenous groups who have access to similar data. The Ontario cohort defined here is being used to conduct analyses of health outcomes and use of health care services among First Nations people with diabetes in Ontario.
为改善糖尿病护理，原住民领袖及其他人士需要获取人群层面的健康数据。我们详细介绍了用于描述安大略省原住民糖尿病患病率和发病率的协作方法，并给出了该人群与安大略省其他人群相比的人口统计数据。
为确定安大略省的原住民人群及其他人群，我们创建了1995年4月1日至2015年3月31日期间每年的安大略省人群队列。通过原住民与学术研究人员的合作，我们将存储在ICES的基于人群的省级健康管理数据与印度登记册相链接，该登记册可识别所有具有印第安人身份的原住民。我们的协作过程遵循原住民的所有权、控制权、获取权和拥有权（OCAP）原则。
此处展示了2014/15队列（= 13406684）的人口统计学特征。该队列包括158241名具有印第安人身份的原住民和13248443名居住在安大略省的其他人士。通过邮政编码，我们能够确定安大略省几乎所有（99.9%）的原住民居住在（= 55311）或不在（= 102889）原住民社区内。与安大略省其他人群相比，原住民更年轻，且更有可能居住在半城市或农村地区。
本研究中使用的协作方法适用于许多与拥有类似数据的原住民群体合作的司法管辖区。此处定义的安大略省队列正用于分析安大略省糖尿病原住民的健康结果和医疗服务使用情况。
