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家长对听神经病患儿人工耳蜗植入术后生活质量的看法。

Parents' View on Quality of Life after Cochlear Implantation in Children with Auditory Neuropathy.

作者信息

Tokat Taşkın, Çatlı Tolgahan, Başaran Bozkurt Ergün, Atsal Görkem, Muderris Togay, Olgun Levent

机构信息

Department of Otorhinolaryngology, Bozyaka Training and Research Hospital, İzmir, Turkey.

Department of Otorhinolaryngology, Baskent University Hospital, İzmir, Turkey.

出版信息

J Int Adv Otol. 2019 Dec;15(3):338-344. doi: 10.5152/iao.2019.6103.

Abstract

OBJECTIVES

The aim of this study is to evaluate the quality of life in pediatric patients with auditory neuropathy according to the perspective of their parents after cochlear implantation.

MATERIALS AND METHODS

The pediatric patients, who underwent cochlear implantation with the diagnosis of auditory neuropathy at İzmir Bozyaka Training and Research Hospital ENT Clinic between January 1997 and May 2017, were included to the study. "Parents' Perspective Questionnaire" developed by Nottingham Pediatric Cochlear Implant Programme was used in the study. The questionnaire was composed of 11 subscales and 58 questions in total.

RESULTS

The study included 26 pediatric patients (14 female, 12 male) who used cochlear implant for at least 1 year. The mean age of patients was 10.91±3.85 ( 4.3-17.3 years old) and implantation age varied between 14 months and 80 months. (median; 35.65±20.03 months). Patients who attended school had more self-confidence, and also those having implant use over 6 years had a better self confidence and social relationship.

CONCLUSION

Cochlear implantation not only improves the ability of hearing but also provides development of speech and language skills and therefore enhancing the patient's quality of life. From the perspective of parents, the use of cochlear implant in the children with auditory neuropathy improves the quality of life in many different ways. The perspective of parents can provide a multidimensional evaluation about the child's progress, therefore, ıt should be taken into consideration by the staff in implant centers.

摘要

目的

本研究旨在从接受人工耳蜗植入的小儿听觉神经病患者父母的角度评估其生活质量。

材料与方法

纳入1997年1月至2017年5月间在伊兹密尔博兹亚卡培训与研究医院耳鼻喉科门诊被诊断为听觉神经病并接受人工耳蜗植入的小儿患者。本研究使用了由诺丁汉小儿人工耳蜗植入项目开发的“父母视角问卷”。该问卷共由11个分量表和58个问题组成。

结果

本研究纳入了26例使用人工耳蜗至少1年的小儿患者(14例女性,12例男性)。患者的平均年龄为10.91±3.85岁(4.3 - 17.3岁),植入年龄在14个月至80个月之间(中位数;35.65±20.03个月)。上学的患者更有自信,使用人工耳蜗超过6年的患者在自信和社交关系方面也更好。

结论

人工耳蜗植入不仅能提高听力,还能促进言语和语言技能的发展,从而提高患者的生活质量。从父母的角度来看,在患有听觉神经病的儿童中使用人工耳蜗能在许多不同方面改善生活质量。父母的观点可以为孩子的进步提供多维度的评估,因此,植入中心的工作人员应予以考虑。

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本文引用的文献

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Cochlear Implantation in Postmeningitic Deafness.脑膜炎后耳聋的人工耳蜗植入
J Craniofac Surg. 2018 May;29(3):e245-e248. doi: 10.1097/SCS.0000000000004265.
4
Auditory neuropathy spectrum disorder (ANSD) and cochlear implantation.听觉神经病谱系障碍(ANSD)与人工耳蜗植入
Int J Pediatr Otorhinolaryngol. 2015 Dec;79(12):1980-7. doi: 10.1016/j.ijporl.2015.10.006. Epub 2015 Oct 17.
7
Cochlear implantation in children with auditory neuropathy spectrum disorders.听觉神经病谱系障碍儿童的人工耳蜗植入
Cochlear Implants Int. 2014 May;15 Suppl 1:S51-4. doi: 10.1179/1467010014Z.000000000157.

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