Alice Lee Centre for Nursing Studies, National University of Singapore, Singapore, Singapore.
Nursing Department, Singapore General Hospital, Singapore, Singapore.
Support Care Cancer. 2020 Sep;28(9):4275-4283. doi: 10.1007/s00520-019-05273-3. Epub 2020 Jan 3.
To explore the experiences of haematopoietic stem cell transplant survivors attending the long-term follow-up unit.
A descriptive qualitative study of eight post-haematopoietic stem cell transplant survivors which were interviewed guided by the sense of coherence framework. Thematic analysis was used to extract meaningful explication of the survivors' experiences.
The post-haematopoietic stem cell transplant survivors interviewed were five females and three males with age ranging from 27 to 67 years and had the stem cell transplant between 4 and 20 years. Three main themes emerged from the data including (1) comprehending the experience, (2) acknowledging the meaningfulness of the experience and (3) managing threats to a new life after the transplant. The experiences of post-haematopoietic stem cell transplant survivors were initially difficult but they were able to make re-adjustments to their new life by reconciling with their new identity, refocusing on meaningful activities, strengthening their resilience and navigating the healthcare system.
In spite of the difficulties faced by the survivors, they were able to face the challenges and made adjustment in a positive light by focusing on the valuable aspects of their experiences. Health care practitioners need to continually support them throughout their survivorship journey no matter how long it takes. Any long-term follow-up unit is a step in the right direction to meet the complex needs of the survivors by integrating and adapting clinical guidelines into routine oncologic and transplant care so that survivors are not lost in transition following treatment.
探索接受长期随访的造血干细胞移植幸存者的体验。
采用描述性定性研究方法，对 8 名造血干细胞移植后幸存者进行了采访，采访过程由社会认知理论框架指导。采用主题分析方法从幸存者的经验中提取有意义的解释。
接受采访的造血干细胞移植后幸存者年龄为 27 至 67 岁，其中女性 5 人，男性 3 人，干细胞移植时间为 4 至 20 年。数据中出现了 3 个主要主题，包括（1）理解经历，（2）认识经历的意义，（3）管理移植后新生活的威胁。造血干细胞移植后幸存者的经历最初很困难，但他们能够通过与新身份和解、重新专注于有意义的活动、增强韧性和驾驭医疗保健系统来适应新生活。
尽管幸存者面临困难，但他们能够以积极的态度面对挑战并进行调整，关注经历中有价值的方面。医疗保健从业者需要在整个生存过程中不断支持他们，无论需要多长时间。任何长期随访单位都是朝着正确的方向迈出的一步，通过将临床指南整合和适应到常规肿瘤学和移植护理中，满足幸存者的复杂需求，以免在治疗后过渡期间失去幸存者。
