Faculty of Economics and Management, East China Normal University, Shanghai 200062, China.
School of International and Public Affairs, China Institute for Urban Governance, Shanghai Jiao Tong University, Shanghai 200030, China.
Int J Environ Res Public Health. 2020 Jan 10;17(2):455. doi: 10.3390/ijerph17020455.
Caregiving burden significantly effects the physical and mental health of family dementia caregivers. While the association between objective caregiving burden (OCB) and subjective caregiving burden (SCB) of family dementia caregivers is well documented, little is known as with how the association is moderated by the configuration of intrapersonal resource (e.g., immanent justice reasoning) and interpersonal resource (e.g., social support). The present study collected cross-sectional data on 157 major family caregivers of non-institutionalized persons with dementia in an urbanizing region of Western China's Sichuan Province. They responded to questions on daily time spent on caregiving, the short version of Zarit Burden Interview (ZBI), a sub-scale of a caregiver meaning scale, Social Support Rating Scale (SSRS), and demographic questions. Controlling for the demographic variables of the caregivers, this study found that the objective and subjective dementia caregiving burden were significantly associated ( < 0.001), and immanent justice reasoning was positively correlated with subjective burden ( < 0.01). Moreover, the association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both high ( < 0.001), but neutral when social support was high and immanent justice reasoning was low. The association between OCB and SCB was significantly positive when social support and immanent justice reasoning were both low ( < 0.05), but neutral when social support was low and immanent justice reasoning was high. This research suggests the importance of developing intervention programs that consider the configuration of the external supporting resources and internal meaning-making of caregiving of the family dementia caregivers.
照料负担显著影响家庭痴呆症照料者的身心健康。虽然家庭痴呆症照料者的客观照料负担（OCB）和主观照料负担（SCB）之间的关联已有充分记录，但对于内在资源（例如内在正义推理）和人际资源（例如社会支持）的配置如何调节这种关联，人们知之甚少。本研究在中国西部四川省一个城市化地区收集了 157 名非住院痴呆症患者的主要家庭照料者的横断面数据。他们回答了关于日常照料时间、Zarit 负担访谈（ZBI）简短版、照料者意义量表的一个子量表、社会支持评定量表（SSRS）和人口统计学问题的问题。在控制照料者人口统计学变量的情况下，本研究发现客观和主观的痴呆症照料负担呈显著相关（<0.001），内在正义推理与主观负担呈正相关（<0.01）。此外，当社会支持和内在正义推理都较高时，OCB 和 SCB 之间的关联呈显著正相关（<0.001），但当社会支持较高而内在正义推理较低时，关联呈中性。当社会支持和内在正义推理都较低时，OCB 和 SCB 之间的关联呈显著正相关（<0.05），但当社会支持较低而内在正义推理较高时，关联呈中性。这项研究表明，开发干预计划的重要性，这些计划应考虑家庭痴呆症照料者的外部支持资源的配置和照料的内在意义。
