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泰国曼谷原发性痴呆症照料者的生活质量与主观负担

Quality of life and subjective burden of primary dementia caregivers in Bangkok, Thailand.

作者信息

Sittironnarit Gobhathai, Emprasertsuk Weerapat, Wannasewok Kamonnet

机构信息

Department of Psychiatry, Faculty of Medicine Siriraj Hospital, Mahidol University, Thailand.

Department of Psychiatry, Faculty of Medicine Siriraj Hospital, Mahidol University, Thailand.

出版信息

Asian J Psychiatr. 2020 Feb;48:101913. doi: 10.1016/j.ajp.2019.101913. Epub 2019 Dec 26.

Abstract

PURPOSE

To study and compare factors correlated with quality of life and subjective burden of primary dementia caregivers at the Psychiatric Outpatient Unit of Siriraj Hospital in Bangkok, Thailand.

METHODS

One hundred and fifty-five dementia caregivers were enrolled from September 2015 to May 2016. A set of general information questionnaires, the Pictorial Thai Quality of Life (PTQL) and the Thai version of the Zarit Burden Interview (ZBI) were used to collect general information, quality of life and subjective burden data. Factors correlated with quality of life and subjective burden were analyzed by Chi-square test. Multiple regression analysis was used to define factors predictive of the caregivers' quality of life.

RESULTS

Forty percent of the participants assessed themselves as having burden. Positive predictive factors of the caregivers' quality of life included high education, income, satisfaction towards psychiatric care and having jobs. Female gender, having financial problems, sickness, long caregiving hours per day, burden from taking care of other dependents, and subjective burden (p < 0.05) were negative predictive factors of dementia caregivers' quality of life.

CONCLUSION

The primary dementia caregivers' quality of life was correlated with their subjective burden, socioeconomic status and caregiving experiences. It is crucial to promote confidence in caregiving, perceived social support and positive satisfaction towards mental health care for dementia caregivers.

摘要

目的

研究并比较泰国曼谷诗里拉吉医院精神科门诊原发性痴呆症照料者的生活质量和主观负担的相关因素。

方法

2015年9月至2016年5月招募了155名痴呆症照料者。使用一套一般信息问卷、泰国生活质量图片量表(PTQL)和泰语版的扎里特负担访谈量表(ZBI)来收集一般信息、生活质量和主观负担数据。通过卡方检验分析与生活质量和主观负担相关的因素。采用多元回归分析来确定预测照料者生活质量的因素。

结果

40%的参与者认为自己有负担。照料者生活质量的积极预测因素包括高学历、收入、对精神科护理的满意度和有工作。女性、有经济问题、患病、每天照料时间长、照顾其他受抚养人的负担以及主观负担(p<0.05)是痴呆症照料者生活质量的消极预测因素。

结论

原发性痴呆症照料者的生活质量与其主观负担、社会经济地位和照料经历相关。增强痴呆症照料者的照料信心、感知到的社会支持以及对精神卫生保健的积极满意度至关重要。

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