Prostate Cancer Foundation of Australia, Sydney, New South Wales, Australia.
Division of Research & Innovation, University of Southern Queensland, Springfield, Queensland, Australia.
Psychooncology. 2020 Mar;29(3):557-563. doi: 10.1002/pon.5306. Epub 2020 Jan 15.
To describe contemporary consumer experiences and priorities of prostate cancer survivorship to inform the development of survivorship guidelines.
In a cross-sectional qualitative design, semi-structured interviews were undertaken with fifty prostate cancer support group leaders (50% response) across urban and rural/regional Australia. An interpretative phenomenological approach was used to identify participants' experiences and priorities of survivorship.
Three themes were identified for informing the development of prostate cancer survivorship guidelines: (a) the Experience of Diagnosis and Treatment, (b) Priorities for Survivorship and (c) Mechanisms for Support. Four priorities for prostate cancer survivorship were: delivering person and men-centred care; improving communication; improving care coordination; and facilitating access to care. Mechanisms for support were as follows: advocacy; peer support; prostate cancer specialist nurses; and communication training for health professionals.
The lack of progress in changing prostate cancer survivorship outcomes for men will become increasingly problematic as this patient population group grows. Co-production provides a way forward to ensure relevance and accessibility for future survivorship initiatives.
描述前列腺癌生存者的当代消费体验和优先事项，为生存指南的制定提供信息。
在一项横断面定性设计中，对澳大利亚城乡/地区的 50 名前列腺癌支持小组组长（50%的回应率）进行了半结构化访谈。采用解释现象学方法来确定参与者对生存的体验和优先事项。
确定了三个主题，为制定前列腺癌生存指南提供信息：（a）诊断和治疗的体验，（b）生存的优先事项，（c）支持的机制。前列腺癌生存的四个优先事项是：提供以人为本和以男性为中心的护理；改善沟通；改善护理协调；并促进获得护理。支持机制如下：倡导；同伴支持；前列腺癌专科护士；以及对卫生专业人员的沟通培训。
随着这一患者群体的增长，男性在改变前列腺癌生存结果方面缺乏进展，这将变得越来越成问题。共同制定可确保未来生存倡议的相关性和可及性。
