Burke Shaunna, Utley Andrea, Belchamber Caroline, McDowall Louise
University of Leeds.
Sue Ryder.
Res Q Exerc Sport. 2020 Sep;91(3):500-513. doi: 10.1080/02701367.2019.1687808. Epub 2020 Jan 28.
: Physical activity (PA) is increasingly being used in hospice care as a rehabilitation strategy to help patients manage symptoms and improve quality of life. However, little is known about how to design and deliver interventions that promote uptake and maintenance of PA in this population. Single-level approaches (i.e., psychological models) have primarily been used to study factors that influence PA engagement among patients with advanced, incurable disease and therefore offer a limited perspective on strategies that target changes beyond the individual level. This study explored perspectives on factors perceived important for influencing PA participation in hospice care using a social-ecological framework. : Patients (n = 27) and health providers (n = 5) from multiple hospices (n = 5) across the UK were involved in this study. Data were collected using focus group and individual semi-structured interviews and analyzed using a thematic framework approach. : Eight main themes were perceived to be important for influencing PA engagement at the individual, interpersonal, physical environment, community, and policy levels including: (1) PA as therapy; (2) apprehension about PA-induced harm; (3) group-based PA with peers; (4) supervised PA sessions; (5) limited facilities and access; (6) patient-centered approach; (7) lack of a strong PA culture and; (8) absence of a policy and guidance for PA provision. : Hospice-based PA interventions that target multiple levels simultaneously may be more effective at successfully changing and sustaining patients' PA behavior. Study findings provide evidence-based recommendations that may facilitate the effective delivery of PA interventions in hospice care.
体育活动(PA)越来越多地被用于临终关怀护理,作为一种康复策略来帮助患者控制症状并提高生活质量。然而,对于如何设计和提供促进该人群参与并维持体育活动的干预措施,我们知之甚少。单层次方法(即心理模型)主要用于研究影响晚期绝症患者参与体育活动的因素,因此对于针对个体层面以外变化的策略提供的视角有限。本研究使用社会生态框架探讨了对于影响临终关怀护理中体育活动参与的重要因素的观点。来自英国各地多家临终关怀机构(n = 5)的患者(n = 27)和健康服务提供者(n = 5)参与了本研究。通过焦点小组和个人半结构化访谈收集数据,并使用主题框架方法进行分析。八个主要主题被认为对于在个体、人际、物理环境、社区和政策层面影响体育活动参与很重要,包括:(1)体育活动作为治疗方法;(2)对体育活动造成伤害的担忧;(3)与同龄人一起进行的基于小组的体育活动;(4)有监督的体育活动课程;(5)设施和机会有限;(6)以患者为中心的方法;(7)缺乏浓厚的体育活动文化;(8)缺乏体育活动提供的政策和指导。同时针对多个层面的基于临终关怀机构的体育活动干预措施,可能在成功改变和维持患者的体育活动行为方面更有效。研究结果提供了基于证据的建议,可能有助于在临终关怀护理中有效实施体育活动干预措施。