Bangor University, Bangor, United Kingdom.
Qual Health Res. 2020 Apr;30(5):717-729. doi: 10.1177/1049732319900498. Epub 2020 Jan 29.
In this case study research, we investigated the impact that having a parent with a neurological condition can have on young adults' experiences of growing up and the nature of their support networks. The work was informed by models of interface of chronic conditions and the family. Stroke ( = 6), multiple sclerosis ( = 14), and dementia ( = 11) were selected as discrete cases. Within each case, the researcher (a) carried out semi-structured interviews with young adults (16-25 years) living in families affected by this condition and (b) organized a workshop in which all participants reviewed preliminary themes and reflected on their support networks. A thematic analysis identified four themes: , and . A model of networks and support for these young adults was generated reflecting the need to increase their visibility and their access to support.
在这项案例研究中，我们调查了父母患有神经疾病对年轻人成长经历和支持网络性质的影响。这项工作的依据是慢性疾病与家庭的界面模型。我们选择了中风（= 6）、多发性硬化症（= 14）和痴呆症（= 11）作为离散案例。在每个案例中，研究人员（a）对生活在受这种疾病影响的家庭中的年轻人（16-25 岁）进行了半结构化访谈，（b）组织了一个研讨会，让所有参与者审查初步主题并思考他们的支持网络。主题分析确定了四个主题：、和。为这些年轻人生成了一个网络和支持模型，反映了增加他们的可见度和获得支持的需求。
