Unit for Social and Community Psychiatry, (WHO Collaborating Centre for Mental Health Services Development), Queen Mary University of London, Glen Road, London, E13 8SP, UK.
East London NHS Foundation Trust, Glen Road, London, E13 8SP, UK.
BMC Psychiatry. 2020 Jan 29;20(1):29. doi: 10.1186/s12888-020-2445-4.
People with psychosis experience more social isolation than any other diagnostic group and have smaller social networks than the general population. This isolation can have a detrimental effect on quality of life. No direct, standardised interventions have been developed to specifically target this issue. Stakeholders input appears crucial in the process of developing such an intervention. This study aimed to identify the main considerations when developing an intervention aiming to reduce social isolation in people with psychosis.
Focus groups and individual interviews were conducted with patients, carers and mental health staff. Data was thematically analysed.
Thirty four patients with psychosis, 26 carers of people experiencing psychosis and 22 mental health professionals participated in the study. Suggested aspects to be considered in a novel intervention were: i) finding and training the right staff member; ii) discussing negative social attitudes and patients' previous negative experiences, iii) addressing personal ambivalence; iv) establishing how best to provide information about social activities; v) facilitating access to social activities, vi) striking a balance between support and independence.
The suggestions identified can help to develop more targeted approaches to reduce social isolation within this patient group. A patient-centred approach and generic communication skills appear to be underpinning most of the helpful elements identified, whilst specific techniques and skills can help to overcome negative past experiences and motivational barriers.
精神病患者比其他任何诊断群体经历更多的社会孤立，并且社交网络比一般人群更小。这种孤立会对生活质量产生不利影响。目前尚未针对这一问题专门开发直接的、标准化的干预措施。利益相关者的投入在开发此类干预措施的过程中至关重要。本研究旨在确定旨在减少精神病患者社会隔离的干预措施的主要考虑因素。
对患者、照顾者和精神卫生专业人员进行了焦点小组和个人访谈。对数据进行了主题分析。
34 名精神病患者、26 名经历精神病的照顾者和 22 名精神卫生专业人员参加了这项研究。提出了新的干预措施需要考虑的方面：i）找到并培训合适的员工；ii）讨论负面的社会态度和患者以前的负面经历；iii）解决个人的矛盾心理；iv）确定如何最好地提供有关社会活动的信息；v）促进参与社会活动；vi）在支持和独立之间取得平衡。
确定的建议有助于针对这一患者群体制定更有针对性的方法来减少社会隔离。以患者为中心的方法和通用沟通技巧似乎是确定的最有帮助的要素的基础，而特定的技术和技能可以帮助克服负面的过去经历和动机障碍。
