Oliver David, Veronese Simone
Tizard Centre, Cornwallis North East, University of Kent, Canterbury, UK.
Fondazione F.A.R.O. Onlus, Turin, Italy.
Ann Palliat Med. 2020 Feb;9(Suppl 1):S52-S62. doi: 10.21037/apm.2019.12.01. Epub 2020 Jan 24.
Patients, and their families, with Parkinson's disease (PD) and related disorders face many issues, including physical, psychological, social and spiritual. Palliative care is an essential part of care from the time of diagnosis, and should be provided by all services involved with the patient and family. Specialist palliative care is able to support the overall care particularly for complex issues-whether symptoms or psychosocial and spiritual problems, ethical and decisions making issues, and at the end of life. This should be in collaboration with other teams, working together to improve the quality of life (QOL) of patients and families, supporting the professional teams and enabling patients to be as fully involved in the decisions about their care and at the end of life.
患有帕金森病（PD）及相关病症的患者及其家属面临诸多问题，包括身体、心理、社会和精神方面的问题。姑息治疗从诊断之时起就是护理的重要组成部分，应由所有参与患者及其家庭护理的服务机构提供。专科姑息治疗能够为整体护理提供支持，尤其是针对复杂问题——无论是症状问题、心理社会和精神问题、伦理和决策问题，还是临终问题。这应该与其他团队合作，共同努力提高患者及其家庭的生活质量（QOL），支持专业团队，并使患者能够充分参与有关其护理及临终事宜的决策。
