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帕金森病及相关障碍的姑息治疗临床医生须知的十大要点。

Top Ten Tips Palliative Care Clinicians Should Know About Parkinson's Disease and Related Disorders.

机构信息

1 Department of Neurology, University of California , San Francisco, San Francisco, California.

2 Division of Palliative Medicine, Department of Medicine, University of California , San Francisco, San Francisco, California.

出版信息

J Palliat Med. 2018 Oct;21(10):1507-1517. doi: 10.1089/jpm.2018.0390. Epub 2018 Sep 11.

Abstract

Parkinson's disease (PD) affects 1%-2% of individuals older than 60 years and is the 14th leading cause of death in the United States. People with PD, across all stages of the disease, suffer from a significant symptom burden that includes many nonmotor symptoms (such as depression, fatigue, pain, and dementia), and most will ultimately die from complications of this degenerative and incurable illness. Even at diagnosis, a palliative care (PC) approach can help the patient adjust to his or her diagnosis and maintain an optimal quality of life. We brought together a team of PD and PC experts to assemble practical tips for the care of people with PD. The "Top 10" format emphasizes the most relevant issues to enable PC clinicians to provide optimal care for those suffering with this complex neurodegenerative disease.

摘要

帕金森病(PD)影响 1%-2%的 60 岁以上人群,是美国第 14 大死亡原因。PD 患者在疾病的各个阶段都承受着沉重的症状负担,包括许多非运动症状(如抑郁、疲劳、疼痛和痴呆),大多数患者最终将死于这种进行性和不可治愈的疾病的并发症。即使在诊断时,姑息治疗(PC)方法也可以帮助患者适应诊断并保持最佳生活质量。我们召集了一组 PD 和 PC 专家,为 PD 患者的护理汇集了实用的建议。“十大”格式强调了最相关的问题,使 PC 临床医生能够为患有这种复杂神经退行性疾病的患者提供最佳护理。

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