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“在他们自己的时间里”:父母温柔地推动自闭症青年走向独立的社区流动性和参与。

"In Their Own Time": Parents Gently Push Their Autistic Youth Towards Independent Community Mobility and Participation.

机构信息

School of Nursing and Midwifery, Western Sydney University, Hawkesbury Campus, Locked Bag 3, Richmond, Sydney, NSW, 2753, Australia.

The Cooperative Research Centre for Living with Autism (Autism CRC), Indooroopilly, Brisbane, Australia.

出版信息

J Autism Dev Disord. 2020 Aug;50(8):2806-2818. doi: 10.1007/s10803-020-04384-9.

DOI:10.1007/s10803-020-04384-9
PMID:32026172
Abstract

Autistic adults have decreased independence in community mobility and driving, which is associated with decreased participation in work, education and community participation. This is the first exploration of the development of community mobility, driving and participation skills over adolescence and emerging adulthood. Interviews with 15 mothers of autistic youth, capable of independence, were qualitatively analysed using grounded theory. Four major themes emerged: mothers gently pushing, teaching, letting go and working towards hopes and dreams. These results suggest earlier intervention across adolescence to address social skills, communication and anxiety in normative community environments, is required for successful development of community mobility and driving skills. Further understanding the critical role of confidence, feeling safe and accepted, could ultimately improve independence.

摘要

自闭症成年人在社区活动和驾驶方面的独立性降低,这与他们在工作、教育和社区参与方面的参与度降低有关。这是首次探索自闭症青少年和成年早期的社区活动能力、驾驶能力和参与技能的发展情况。通过扎根理论对 15 名有独立能力的自闭症青年的母亲进行了访谈,并对访谈内容进行了定性分析。出现了四个主要主题:母亲温和地推动、教导、放手以及为希望和梦想而努力。这些结果表明,需要在青少年时期进行早期干预,以解决社交技能、沟通和焦虑问题,在规范的社区环境中,这对于成功发展社区活动和驾驶技能是必要的。进一步了解信心、安全感和被接受感的关键作用,最终可能会提高独立性。

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