Department of Occupational Therapy, Boston University, Boston, MA, USA.
Autism. 2019 Aug;23(6):1363-1372. doi: 10.1177/1362361318812141. Epub 2018 Nov 16.
Researchers have documented that young adults with autism spectrum disorder have poor outcomes in employment, post-secondary education, social participation, independent living, and community participation. There is a need to further explore contributing factors to such outcomes to better support successful transitions to adulthood. Parents play a critical role in transition planning, and parental expectations appear to impact young adult outcomes for autistic individuals. The aim of this study was to explore how parents express their future visions (i.e. hopes and expectations) for their autistic transition-age youth. Data were collected through focus groups and individual interviews with 18 parents. Parents' hopes and expectations focused on eight primary domains. In addition, parents often qualified or tempered their stated hope with expressions of fears, uncertainty, realistic expectations, and the perceived lack of guidance. We discuss our conceptualization of the relations among these themes and implications for service providers and research.
研究人员记录到,患有自闭症谱系障碍的年轻人在就业、高等教育、社会参与、独立生活和社区参与方面的结局较差。需要进一步探讨造成这些结果的因素,以便更好地支持他们成功过渡到成年期。父母在过渡规划中起着至关重要的作用,而父母的期望似乎会影响自闭症个体的年轻成人结局。本研究旨在探讨父母如何表达他们对自闭症青少年过渡时期的未来愿景(即希望和期望)。研究通过焦点小组和 18 位家长的个人访谈收集数据。家长的希望和期望集中在八个主要领域。此外,家长们经常用表达恐惧、不确定性、现实期望和缺乏指导的方式来限定或缓和他们的期望。我们讨论了对这些主题之间关系的理解以及对服务提供者和研究的影响。