Department of Hematology and Oncology, Stavanger University Hospital, Stavanger, Norway.
SHARE - Centre for Resilience in Healthcare, Faculty of Health Sciences, University of Stavanger, Stavanger, Norway.
J Adv Nurs. 2020 May;76(5):1232-1246. doi: 10.1111/jan.14315. Epub 2020 Mar 2.
AIM/S: To explore next of kin satisfaction with cancer care, map next of kin suggestions for involvement and combine this information to create a basis for improving quality and safety in hospitals.
Convergent parallel mixed-methods design applying the 20-item FAMCARE Scale survey instrument for quantitative measurement of satisfaction with care and with an open-ended question used for qualitative analysis.
Responses from 238 next of kin (November 2016-November 2017).
Exploratory factor analysis, regression analysis and qualitative content analysis were combined.
Both hospitals scored better in medical treatment (median, interquartile range: 1.5, 1.1-2.0), than in satisfaction with information and involvement of next of kin (1.9, 1.3-2.4), p < .001 (Wilcoxon signed ranks test). After adjusting for differences in demographical and clinical variables, the total FAMCARE scores were 13% higher (95% confidence interval: 1%-27%, Wald p = .029) at one of the hospitals. Qualitative findings support that the hospitals are not providing an equal offer to next of kin involvement in hospital cancer care that includes a proactive approach.
As a basis for quality and safety improvement, next of kin satisfaction and involvement in cancer care should be addressed in a two-sided perspective, balancing the next of kin's need for involvement in cancer treatment with the patient's perspective.
There is limited knowledge of next of kin satisfaction with hospital cancer care and how next of kin would like to be involved in this trajectory. Several aspects of satisfaction with cancer care can prompt change to improve service quality and safety (e.g. information, involvement, practical care), but this is an underused source of information. Next of kin are key in cancer care and our study demonstrates a potential large impact on future practical ways of improving cancer care service provision in an integrative perspective including next of kin.
探索亲属对癌症护理的满意度，绘制亲属参与建议图，并将这些信息结合起来，为提高医院的质量和安全性奠定基础。
采用 20 项 FAMCARE 量表调查工具的收敛平行混合方法设计，对护理满意度和开放性问题进行定量测量，用于定性分析。
2016 年 11 月至 2017 年 11 月 238 名亲属的回应。
结合探索性因子分析、回归分析和定性内容分析。
两家医院在医疗方面的评分（中位数，四分位距：1.5，1.1-2.0）均优于信息和亲属参与度（1.9，1.3-2.4），p<.001（Wilcoxon 符号秩检验）。在调整了人口统计学和临床变量的差异后，一家医院的 FAMCARE 总分高出 13%（95%置信区间：1%-27%，Wald p=.029）。定性研究结果表明，这两家医院并没有为亲属参与癌症护理提供平等的机会，包括主动的方法。
作为质量和安全改进的基础，应从双方角度来解决癌症护理中亲属的满意度和参与度问题，平衡亲属参与癌症治疗的需求与患者的观点。
人们对亲属对医院癌症护理的满意度以及亲属希望在这方面参与的方式知之甚少。癌症护理满意度的几个方面可以促使改变以提高服务质量和安全性（例如信息、参与、实际护理），但这是一个未被充分利用的信息来源。亲属是癌症护理的关键，我们的研究表明，从综合角度来看，包括亲属在内，以未来实际的方式改善癌症护理服务提供具有潜在的巨大影响。
