Mlikotic Rebecca, Parker Brent, Rajapakshe Rasika
British Columbia Cancer Agency, Sindi Ahluwalia Hawkins Centre for the Southern Interior, Kelowna, BC, Canada.
J Med Internet Res. 2016 Mar 22;18(3):e70. doi: 10.2196/jmir.5068.
Increased usage of Internet applications has allowed for the collection of patient reported outcomes (PROs) and other health data through Web-based communication and questionnaires. While these Web platforms allow for increased speed and scope of communication delivery, there are certain limitations associated with this technology, as survey mode preferences vary across demographic groups.
To investigate the impact of demographic factors and participant preferences on the use of a Web-based questionnaire in comparison with more traditional methods (mail and phone) for women participating in screening mammography in British Columbia, Canada.
A sample of women attending the Screening Mammography Program of British Columbia (SMPBC) participated in a breast cancer risk assessment project. The study questionnaire was administered through one of three modes (ie, telephone, mail, or website platform). Survey mode preferences and actual methods of response were analyzed for participants recruited from Victoria General Hospital. Both univariate and multivariate analyses were used to investigate the association of demographic factors (ie, age, education level, and ethnicity) with certain survey response types.
A total of 1192 women successfully completed the study questionnaire at Victoria General Hospital. Mail was stated as the most preferred survey mode (509/1192, 42.70%), followed by website platform (422/1192, 35.40%), and telephone (147/1192, 12.33%). Over 80% (955/1192) of participants completed the questionnaire in the mode previously specified as their most preferred; mail was the most common method of response (688/1192, 57.72%). Mail was also the most preferred type of questionnaire response method when participants responded in a mode other than their original preference. The average age of participants who responded via the Web-based platform (age 52.9, 95% confidence interval [CI] 52.1-53.7) was significantly lower than those who used mail and telephone methods (age 55.9, 95% CI 55.2-56.5; P<.001); each decade of increased age was associated with a 0.97-fold decrease in the odds of using the website platform (P<.001). Web-based participation was more likely for those who completed higher levels of education; each interval increase leading to a 1.83 increase in the odds of website platform usage (P<.001). Ethnicity was not shown to play a role in participant preference for the website platform (P=.96).
It is beneficial to consider participant survey mode preference when planning to collect PROs and other patient health data. Younger participants and those of higher education level were more likely to use the website platform questionnaire; Web-based participation failed to vary across ethnic group. Because mail questionnaires were still the most preferred survey mode, it will be important to employ strategies, such as user-friendly design and Web-based support, to ensure that the patient feedback being collected is representative of the population being served.
互联网应用的使用增加,使得通过基于网络的通信和问卷来收集患者报告的结局(PROs)及其他健康数据成为可能。虽然这些网络平台提高了通信传递的速度和范围,但这项技术存在某些局限性,因为不同人口群体的调查方式偏好有所不同。
与更传统的方法(邮件和电话)相比,调查人口统计学因素和参与者偏好对加拿大不列颠哥伦比亚省参加乳腺钼靶筛查的女性使用基于网络的问卷的影响。
不列颠哥伦比亚省乳腺钼靶筛查项目(SMPBC)的一组女性参与了一项乳腺癌风险评估项目。研究问卷通过三种方式之一进行发放(即电话、邮件或网站平台)。对从维多利亚总医院招募的参与者的调查方式偏好和实际回复方法进行了分析。单因素和多因素分析均用于研究人口统计学因素(即年龄、教育水平和种族)与某些调查回复类型之间的关联。
维多利亚总医院共有1192名女性成功完成了研究问卷。邮件被列为最受欢迎的调查方式(509/1192,42.70%),其次是网站平台(422/1192,35.40%),电话(147/1192,12.33%)。超过80%(955/1192)的参与者以之前指定为其最偏好的方式完成了问卷;邮件是最常见的回复方式(688/1192,57.72%)。当参与者以非其最初偏好的方式回复时,邮件也是最受欢迎的问卷回复方式类型。通过基于网络的平台回复的参与者的平均年龄(52.9岁,95%置信区间[CI]52.1 - 53.7)显著低于使用邮件和电话方式的参与者(55.9岁,95%CI 55.2 - 56.5;P <.001);年龄每增加十岁,使用网站平台的几率就降低0.97倍(P <.001)。完成教育水平较高的人更有可能通过网络参与;每增加一个区间,使用网站平台的几率就增加1.83倍(P <.001)。种族在参与者对网站平台的偏好方面未显示出作用(P = 0.96)。
在计划收集PROs和其他患者健康数据时,考虑参与者的调查方式偏好是有益的。年轻参与者和教育水平较高的人更有可能使用网站平台问卷;基于网络的参与在不同种族群体中没有差异。由于邮件问卷仍然是最受欢迎的调查方式,采用诸如用户友好设计和基于网络的支持等策略,以确保所收集的患者反馈能够代表所服务的人群,这将是很重要的。