Cudré-Mauroux Annick, Piérart Geneviève, Vaucher Carla
University of Applied Sciences and Arts Western Switzerland / HES-SO, School of Social Work Fribourg, Route des Arsenaux 16a, 1700 Fribourg, Switzerland.
Res Dev Disabil. 2020 Feb 7;99:103602. doi: 10.1016/j.ridd.2020.103602.
People with intellectual disabilities who live in residential facilities may need social support to express self determination. Relationships with social care professionals provide an important context for promoting self-determination. Adopting a socioecological perspective, our study aimed to better understand the nature of these relationships.
Over a period of ten months, we held 13 focus group discussions with a total of 20 participants, including both residents and staff at facilities for people with intellectual disabilities. Using transcripts of these discussions, we analysed expressions of self-determination among people with intellectual disabilities and the responses of social care professionals.
Our results highlight the importance of relational adjustment in fostering self-determination among people with intellectual disabilities and underline the importance of respective roles within relationships between people with intellectual disabilities and social care professionals.
The partnership between people with intellectual disabilities and professionals seems to be the most effective type of relationship in order to support the self-determination of people with intellectual disabilities. This paper provides a fresh perspective on the role played by people with intellectual disabilities in their relationships with social care professionals. By engaging people with intellectual disabilities as partners in fostering self-determination, social care professionals can encourage social participation and feelings of empowerment. Relationships based on partnership offer people with intellectual disabilities a form of hetero-regulation that can help them overcome challenges to behaving in a fully self-determined way. However, partnership also requires changes in professional practices and attitudes.
居住在寄宿机构的智障人士可能需要社会支持来表达自我决定权。与社会护理专业人员的关系为促进自我决定权提供了重要背景。从社会生态视角出发,我们的研究旨在更好地理解这些关系的本质。
在十个月的时间里,我们与总共20名参与者进行了13次焦点小组讨论,其中包括智障人士寄宿机构的居民和工作人员。利用这些讨论的文字记录,我们分析了智障人士的自我决定权表达以及社会护理专业人员的回应。
我们的结果突出了关系调整在促进智障人士自我决定权方面的重要性,并强调了智障人士与社会护理专业人员关系中各自角色的重要性。
智障人士与专业人员之间的伙伴关系似乎是支持智障人士自我决定权的最有效关系类型。本文为智障人士在与社会护理专业人员关系中所扮演的角色提供了新视角。通过让智障人士作为促进自我决定权的伙伴参与其中,社会护理专业人员可以鼓励社会参与和赋权感。基于伙伴关系的关系为智障人士提供了一种异质调节形式,可帮助他们克服完全自主行为所面临的挑战。然而,伙伴关系也需要专业实践和态度的改变。