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个人因素、生活环境与专业支持:它们在智障人士自我决定中的作用

Personal Factors, Living Environments, and Specialized Supports: Their Role in the Self-Determination of People with Intellectual Disability.

作者信息

Vicente Eva, Pérez-Curiel Patricia, Mumbardó-Adam Cristina, Guillén Verónica M, Bravo-Álvarez María-Ángeles

机构信息

Department of Psychology and Sociology, Universidad de Zaragoza, C./Pedro Cerbuna, 12, 50009 Zaragoza, Spain.

Department of Cognition, Development and Educational Psychology, Faculty of Psychology, Universitat de Barcelona, 08035 Barcelona, Spain.

出版信息

Behav Sci (Basel). 2023 Jun 24;13(7):530. doi: 10.3390/bs13070530.

DOI:10.3390/bs13070530
PMID:37503977
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10375979/
Abstract

The self-determination of people with disabilities, and specifically people with intellectual disabilities (ID), is a growing issue due to its relevance in the field of inclusion and human rights. Although research has shown a significant relationship between self-determination and intelligence, other factors also contribute to its development. The purpose of this study was to understand what other variables may be influencing self-determination. Using the scores from 483 adolescents and adults with ID who completed the AUTODDIS scale, we performed inferential and regression analyses to determine the relationships between levels of self-determination, personal variables (sex, age, severity of ID), and contextual variables (living environment, specialized supports). We found that self-determination is affected by the severity of ID, and when this variable is controlled for, greater self-determination is mainly related to receiving occupational support and support for autonomy and independent living. Results also showed that, together with ID severity, occupational and psychoeducational support, as well as support for autonomy and independent living, were also predictors of the level of self-determination. In conclusion, this study confirms the importance of contextual variables in the development of self-determination in people with ID, placing the focus of intervention on social opportunities.

摘要

残疾人的自决,尤其是智力残疾者的自决,由于其在包容和人权领域的相关性,正成为一个日益重要的问题。尽管研究表明自决与智力之间存在显著关系,但其他因素也对其发展有影响。本研究的目的是了解还有哪些其他变量可能影响自决。我们使用483名完成了AUTODDIS量表的智力残疾青少年和成年人的得分,进行了推论分析和回归分析,以确定自决水平、个人变量(性别、年龄、智力残疾严重程度)和情境变量(生活环境、专业支持)之间的关系。我们发现自决受到智力残疾严重程度的影响,当控制这个变量时,更强的自决主要与获得职业支持以及自主和独立生活支持有关。结果还表明,与智力残疾严重程度一起,职业和心理教育支持以及自主和独立生活支持也是自决水平的预测因素。总之,本研究证实了情境变量在智力残疾者自决发展中的重要性,将干预重点放在社会机会上。

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本文引用的文献

1
A measurement of self-determination for people with intellectual disability: description of the AUTODDIS scale and evidences of reliability and external validity.智力残疾者自我决定能力的测量:AUTODDIS量表的描述及其信度和外部效度证据
Int J Dev Disabil. 2021 Aug 20;69(2):317-326. doi: 10.1080/20473869.2021.1965826. eCollection 2023.
2
Perspectives of adolescents with disabilities and their parents regarding autonomous decision-making and self-determination.残疾青少年及其家长对自主决策和自我决定的看法。
Res Dev Disabil. 2023 May;136:104442. doi: 10.1016/j.ridd.2023.104442. Epub 2023 Mar 1.
3
Differences in Self and Proxy Assessments of Self-Determination in Young People with Intellectual Disability: The Role of Personal and Contextual Variables.智力残疾青少年自我决定的自我评估与代理评估的差异:个人及情境变量的作用
Behav Sci (Basel). 2023 Feb 11;13(2):156. doi: 10.3390/bs13020156.
4
Study Protocol for a Randomized Controlled Trial Evaluating the Effectiveness of a Group-Based Self-Determination Enhancement Intervention for Adults with Mild Intellectual Disability and Their Caregivers.一项评价基于团体的自主增强干预对轻度智力障碍成年人及其照护者有效性的随机对照试验研究方案。
Int J Environ Res Public Health. 2022 Feb 4;19(3):1763. doi: 10.3390/ijerph19031763.
5
Psychometric Properties of Self-Determination Inventory: Student Report Among Chinese Students With and Without Intellectual and Developmental Disabilities.自我决定量表的心理测量特性:有和没有智力与发育障碍的中国学生的学生报告
Intellect Dev Disabil. 2022 Feb 1;60(1):41-56. doi: 10.1352/1934-9556-60.1.41.
6
An Overview of Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Supports (12th ed.).《智力残疾概述:定义、诊断、分类及支持体系》(第12版)
Am J Intellect Dev Disabil. 2021 Nov 1;126(6):439-442. doi: 10.1352/1944-7558-126.6.439.
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Behavioral and emotional problems of toddlers with autism spectrum disorder: Effects of parents' sociocultural level and individual factors.自闭症谱系障碍幼儿的行为和情绪问题:父母社会文化水平和个体因素的影响。
Res Dev Disabil. 2021 Dec;119:104106. doi: 10.1016/j.ridd.2021.104106. Epub 2021 Oct 14.
8
A quality of life supports model: Six research-focused steps to evaluate the model and enhance research practices in the field of IDD.一个生活质量支持模型:六个以研究为重点的步骤,用于评估 IDD 领域的模型并增强研究实践。
Res Dev Disabil. 2021 Dec;119:104112. doi: 10.1016/j.ridd.2021.104112. Epub 2021 Oct 14.
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Intellect Dev Disabil. 2021 Aug 1;59(4):315-334. doi: 10.1352/1934-9556-59.4.315.
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Evaluating the self-determination continuum towards seeking support among people with mild to borderline intellectual disabilities.评估轻度至边缘智力障碍人群寻求支持的自主连续体。
J Intellect Disabil Res. 2021 Apr;65(4):348-360. doi: 10.1111/jir.12819. Epub 2021 Feb 10.