Yeşilbaş Osman
Specialist Pediatric Critical Care, Pediatric Intensive Care Unit, Van Research and Training Hospital, University of Health Sciences, Van, Turkey.
Ann Transplant. 2020 Feb 14;25:e920527. doi: 10.12659/AOT.920527.
BACKGROUND The real causes of organ donation refusal decisions of parents after pediatric brain death and the factors that most influence their decisions are not known sufficiently in Turkey. This study aimed to investigate the detailed factors that may be relevant to parents' refusal, including their education level and knowledge about organ donation. MATERIAL AND METHODS Between August 2017 and September 2018, parents who had been asked to allow organ donation from their deceased child were included in this study. An appointment for a home visit for administration of a questionnaire was arranged with the families for the purpose of giving their consent to the study. The questionnaire included items on parents' demographic data, education level, knowledge about organ donation, and the underlying causes of donation refusal. RESULTS The study included 24 parents (12 mothers and 12 fathers) of 13 pediatric patients because the mother of one patient and the father of another died before their child's brain death. The rate of illiteracy in the parents was 33.3% and only one (4.2%) parent had graduated from university. The rate of knowledge about organ donation was 70.9%, and the most common source of information was television programs (35.9%). All parents remarked on their insufficient information about organ donation. The two most common reasons for organ refusal were unwillingness to allow damage to the child's internal organ integrity (28.7%) and thinking that their child would feel pain at the time of organ donation (21.2%). CONCLUSIONS The most important reasons relevant to parents' organ donation refusal are the parents' low level of education and insufficient information about brain death and organ donation. The unwillingness to allow impairment of their child's internal organ integrity and thinking that their child would be in pain at the time of organ donation were the most common reasons.
背景 在土耳其，小儿脑死亡后父母拒绝器官捐赠决定的真正原因以及对其决定影响最大的因素尚未得到充分了解。本研究旨在调查可能与父母拒绝捐赠相关的详细因素，包括他们的教育水平和对器官捐赠的了解。
材料与方法 2017年8月至2018年9月期间，那些被要求允许从其已故孩子身上摘取器官的父母被纳入本研究。为征得家庭对本研究的同意，安排了家访并发放问卷。问卷包括父母的人口统计学数据、教育水平、对器官捐赠的了解以及拒绝捐赠的潜在原因等项目。
结果 本研究纳入了13名儿科患者的24名父母（12名母亲和12名父亲），因为其中一名患者的母亲和另一名患者的父亲在其孩子脑死亡之前去世。父母中的文盲率为33.3%，只有一名（4.2%）父母大学毕业。对器官捐赠的知晓率为70.9%，最常见的信息来源是电视节目（35.9%）。所有父母都表示他们对器官捐赠的信息了解不足。拒绝器官捐赠的两个最常见原因是不愿意让孩子的内部器官完整性受到损害（28.7%）以及认为孩子在器官捐赠时会感到疼痛（21.2%）。
结论 与父母拒绝器官捐赠相关的最重要原因是父母教育水平低以及对脑死亡和器官捐赠的信息了解不足。不愿意让孩子的内部器官完整性受损以及认为孩子在器官捐赠时会感到疼痛是最常见的原因。
