Bellali T, Papazoglou I, Papadatou D
Faculty of Nursing, University of Athens, 123 Papadiamadopoulou str., Athens 11527, Greece.
Intensive Crit Care Nurs. 2007 Aug;23(4):216-25. doi: 10.1016/j.iccn.2007.01.002. Epub 2007 May 1.
The aim of the study was to describe the challenges donor and non-donor parents encounter before, during, and after the organ donation decision, and to identify parents' needs and expectations from health care professionals. A further aim was to propose evidence-based recommendations for effectively introducing the option of donation, and supporting families through the grieving process. This study was undertaken as part of a larger research project investigating the experiences of Greek parents who consented or declined organ and tissue donation, using a qualitative methodology for data collection and analysis. The experiences of 22 Greek bereaved parents of 14 underage brain dead children were studied through semi-structured interviews. Parents' decision-making process was described as challenging and fraught with difficulties both before and after the donation period. Identified challenges were clustered into: (a) personal challenges, (b) conditions of organ request, and (c) interpersonal challenges. Parents' main concern following donation was the lack of information about transplantation outcomes. Findings led to a list of recommendations for nurses and other health professionals for approaching and supporting parents in making choices about paediatric organ donation that are appropriate to them, and for facilitating their adjustment to the sudden death of their underage child.
本研究的目的是描述捐赠者和非捐赠者父母在器官捐赠决定之前、期间和之后所面临的挑战，并确定父母对医疗保健专业人员的需求和期望。另一个目的是提出基于证据的建议，以便有效地引入捐赠选择，并在悲伤过程中支持家庭。本研究是一个更大研究项目的一部分，该项目使用定性方法收集和分析数据，调查同意或拒绝器官和组织捐赠的希腊父母的经历。通过半结构化访谈研究了22位希腊失去亲人的父母（他们的14名未成年脑死亡子女）的经历。父母的决策过程在捐赠期之前和之后都被描述为具有挑战性且充满困难。确定的挑战分为：（a）个人挑战，（b）器官请求条件，以及（c）人际挑战。捐赠后父母最关心的是缺乏关于移植结果的信息。研究结果为护士和其他卫生专业人员提供了一系列建议，以接近和支持父母做出适合他们的儿科器官捐赠选择，并帮助他们适应未成年子女的突然死亡。
