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少数派报告:未成年父母能否拒绝为其子女治疗?

Minority report: can minor parents refuse treatment for their child?

机构信息

Department is Paediatric Critical Care, Oxford University Hospitals NHS Foundation Trust, Oxford, UK

Philosophy, McMaster University, Hamilton, Ontario, Canada.

出版信息

J Med Ethics. 2020 Jun;46(6):355-359. doi: 10.1136/medethics-2019-105702. Epub 2020 Feb 14.

DOI:10.1136/medethics-2019-105702
PMID:32060211
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7279200/
Abstract

Infants are unable to make their own decisions or express their own wishes about medical procedures and treatments. They rely on surrogates to make decisions for them. Who should be the decision-maker when an infant's biological parents are also minors? In this paper, we analyse a case in which the biological mother is a child. The central questions raised by the case are whether minor parents should make medical decisions on behalf of an infant, and if so, what are the limits to this decision-making authority? In particular, can they refuse treatment that might be considered best for the infant? We examine different ethical arguments to underpin parental decision-making authority; we argue that provided that minor parents are capable of fulfilling their parental duties, they should have a right to make medical decisions for their infant. We then examine the ethical limits to minor parents' decision-making authority for their children. We argue that the restricted authority that teenagers are granted to make medical decisions for themselves looks very similar to the restricted autonomy of all parents. That is, they are permitted to make choices, but not harmful choices. Like all parents, minor parents must not abuse or neglect their children and must also promote their welfare. They have a moral right to make medical decisions for their infants within the same 'zone of parental discretion' that applies to adult parents. We conclude that adult and minor parents should have comparable decision-making authority for their infants.

摘要

婴儿无法自己做出医疗程序和治疗的决定或表达自己的意愿。他们依赖代理人代表他们做出决定。当婴儿的亲生父母也是未成年人时,谁应该成为决策者?在本文中,我们分析了一个亲生母亲是未成年人的案例。该案例提出的核心问题是未成年父母是否应该代表婴儿做出医疗决定,如果是,这种决策权的限制是什么?特别是,他们能否拒绝可能被认为对婴儿最有利的治疗?我们考察了支持父母决策权的不同伦理论点;我们认为,只要未成年父母能够履行其父母责任,他们就应该有权为其婴儿做出医疗决定。然后,我们考察了未成年父母为其子女做出决策的伦理限制。我们认为,青少年被赋予的为自己做出医疗决定的有限权力与所有父母的有限自主权非常相似。也就是说,他们可以做出选择,但不能做出有害的选择。与所有父母一样,未成年父母不得虐待或忽视其子女,还必须促进其福利。他们在适用于成年父母的“父母酌处权范围”内,有权为其婴儿做出医疗决定。我们的结论是,成年父母和未成年父母应为其婴儿拥有可比的决策权。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf2e/7279200/ba4537ba3917/medethics-2019-105702f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf2e/7279200/ba4537ba3917/medethics-2019-105702f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf2e/7279200/ba4537ba3917/medethics-2019-105702f01.jpg

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本文引用的文献

1
Refusal of potentially life-saving treatment for minors: The emerging international consensus by courts.未成年人拒绝可能挽救生命的治疗:法院形成的新国际共识
J Law Med. 2016 Jun;23(4):813-34.
2
The Value of Open Deliberation in Clinical Ethics, and the Role of Parents' Reasons in the Zone of Parental Discretion.临床伦理中公开审议的价值以及父母理由在父母自由裁量权范围内的作用。
Am J Bioeth. 2018 Aug;18(8):47-49. doi: 10.1080/15265161.2018.1485773.
3
On the minimal risk threshold in research with children.论儿童研究中的最低风险门槛。
Am J Bioeth. 2014;14(9):3-12. doi: 10.1080/15265161.2014.935879.
4
Deciding for a child: a comprehensive analysis of the best interest standard.为孩子做决定:最佳利益标准的综合分析。
Theor Med Bioeth. 2012 Jun;33(3):179-98. doi: 10.1007/s11017-012-9219-z.
5
How much weight should we give to parental interests in decisions about life support for newborn infants?在关于新生儿生命维持的决策中,我们应该在多大程度上考虑父母的利益?
Monash Bioeth Rev. 2010 Sep;29(2):13.1-25. doi: 10.1007/BF03351523.
6
Parental refusals of medical treatment: the harm principle as threshold for state intervention.父母拒绝医疗救治:伤害原则作为国家干预的门槛
Theor Med Bioeth. 2004;25(4):243-64. doi: 10.1007/s11017-004-3146-6.
7
The best-interests standard as threshold, ideal, and standard of reasonableness.作为门槛、理想及合理性标准的最佳利益标准。
J Med Philos. 1997 Jun;22(3):271-89. doi: 10.1093/jmp/22.3.271.