Department of Internal Medicine, Section of Geriatric Medicine, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
Vilans, National Center of Expertise for Long-term Care, Vilans, PO Box 8228, 3503 RE, Utrecht, The Netherlands.
BMC Med Inform Decis Mak. 2020 Feb 19;20(1):35. doi: 10.1186/s12911-020-1022-6.
Shared decision making (SDM) contributes to personalized decisions that fit the personal preferences of patients when choosing a treatment for a condition. However, older adults frequently face multiple chronic conditions (MCC). Therefore, implementing SDM requires special features. The aim of this paper is to describe the development of an intervention to improve SDM in older adults with MCC.
Following the Medical Research Council framework for developing complex interventions, the SDM intervention was developed step-wise. Based on a literature review and empirical research in a co-creation process with end users, we developed training for geriatricians and a preparatory tool for older patients with MCC and informal caregivers. After assessing feasibility, the intervention was implemented in a pilot study (N = 108) in two outpatient geriatric clinics of an academic and a non-academic teaching hospital in Amsterdam, the Netherlands.
Key elements of the training for geriatricians include developing skills to involve older adults with MCC and informal caregivers in SDM and following the six-step 'Dynamic model for SDM with frail older patients', as well as learning how to explore personal goals related to quality of life and how to form a partnership with the patient and the informal caregiver. Key elements of the preparatory tool for patients include an explicit invitation to participate in SDM, nomination that the patient's own knowledge is valuable, invitation to form a partnership with the geriatrician, encouragement to share information about daily and social functioning and exploration of possible goals. Furthermore, the invitation of informal caregivers to share their concerns was also a key element.
Through a process of co-creation, both training for geriatricians and a preparatory tool for older adults and their informal caregivers were developed, tailored to the needs of the end users and based on the 'Dynamic model of SDM with frail older patients'.
当为一种疾病选择治疗方案时,共享决策(SDM)有助于制定符合患者个人偏好的个性化决策。然而,老年人经常面临多种慢性疾病(MCC)。因此,实施 SDM 需要特殊的特征。本文的目的是描述一种干预措施的开发,以改善患有 MCC 的老年人的 SDM。
根据医学研究委员会(MRC)制定复杂干预措施的框架,逐步开发 SDM 干预措施。基于文献回顾和与最终用户共同创作过程中的实证研究,我们为老年病医生开发了培训,并为患有 MCC 和非正规护理人员的老年患者开发了预备工具。在评估了可行性之后,该干预措施在荷兰阿姆斯特丹的一所学术和非学术教学医院的两个门诊老年诊所进行了试点研究(N=108)。
老年病医生培训的关键要素包括发展技能,使患有 MCC 和非正规护理人员的老年人参与 SDM,并遵循“脆弱老年患者 SDM 的动态模型”的六个步骤,以及学习如何探索与生活质量相关的个人目标,以及如何与患者和非正规护理人员建立伙伴关系。患者预备工具的关键要素包括明确邀请参与 SDM,提名患者自己的知识是有价值的,邀请与老年病医生建立伙伴关系,鼓励分享关于日常生活和社会功能的信息,并探索可能的目标。此外,邀请非正式护理人员分享他们的关注也是一个关键要素。
通过共同创作的过程,为老年病医生开发了培训,为老年人及其非正规护理人员开发了预备工具,这些都针对最终用户的需求,并基于“脆弱老年患者 SDM 的动态模型”。