“以患者为导向的研究”缺少了什么？来自公共卫生系统与服务的视角。
What Is Missing from "Patient-Oriented Research?" A View from Public Health Systems and Services.
作者信息
Pauly Bernadette, Urbanoski Karen, Hartney Elizabeth, Shahram Sana, Marcellus Lenora, Wallace Bruce, Macdonald Marjorie, Hancock Trevor
机构信息
Professor, School of Nursing and Scientist, Canadian Institute for Substance Use Research, University of Victoria, Victoria, BC.
Assistant Professor, School of Public Health and Social Policy, University of Victoria, Scientist, Canadian Institute for Substance Use Research, Victoria, BC.
出版信息
Healthc Policy. 2019 Nov;15(2):10-19. doi: 10.12927/hcpol.2019.26075.
Abstract
Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the lens of public health systems and services research. The SPOR framework is primarily focused on engaging individual patients in health research without attention to broader structural forces that shape health and participation in healthcare systems. Shifting from patient to public involvement and from patient to community engagement and being explicit about the range of health research that SPOR encompasses would enhance the framework and strengthen the potential of SPOR to improve health systems through health protection, promotion and prevention of disease and injury.
摘要
以患者为导向的研究（POR）旨在提高患者在健康研究中的参与度，以改善健康研究和卫生服务。在加拿大，以患者为导向的研究策略（SPOR）框架为开展POR提供指导。我们通过公共卫生系统和服务研究的视角对SPOR框架进行批判性审视。SPOR框架主要侧重于让个体患者参与健康研究，而未关注塑造健康以及参与医疗保健系统的更广泛结构力量。从患者参与转向公众参与，从患者参与转向社区参与，并明确SPOR所涵盖的健康研究范围，将增强该框架，并强化SPOR通过疾病和伤害的预防、促进和健康保护来改善卫生系统的潜力。
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