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改善儿童远程生活方式干预研究:智能心脏研究中参与者和照顾者的反馈。

Improving remote lifestyle intervention studies in children: Participant and caregiver feedback of the smart heart study.

机构信息

Department of Paediatrics, Western University, London, Canada.

Department of Paediatrics, Western University, London, Canada; School of Kinesiology, Western University, London, Canada.

出版信息

Patient Educ Couns. 2020 Jul;103(7):1326-1334. doi: 10.1016/j.pec.2020.02.016. Epub 2020 Feb 13.

DOI:10.1016/j.pec.2020.02.016
PMID:32089389
Abstract

OBJECTIVES

We sought to describe and analyze the quantitative and qualitative feedback obtained from participants and their caregivers of the Smart Heart study, a successful 12-month lifestyle intervention for children with overweight or obesity and congenital heart disease that provided remote lifestyle counseling, to improve future lifestyle interventions in children.

METHODS

Thirty-six participants and caregivers were polled using a standard program evaluation questionnaire at the end of the intervention. Feedback was compiled into themes, and facilitators and barriers to program success were identified.

RESULTS

There was a high level of satisfaction with the intervention and staff interactions as well as a low perceived burden of participation. There were also specific concerns, including mixed impressions regarding technology usage and a less impressive indication of actual impactful behavior change.

CONCLUSIONS

The study identified five themes, and corresponding facilitators and barriers to participant compliance, from the Smart Heart intervention feedback and offered suggestions for improving future lifestyle behavioral intervention study designs in children.

PRACTICE IMPLICATIONS

Remote smartphone counseling is effective and efficient. It is recommended that the counseling messages are specific, the counseling schedule is patient-centric, patient burden is limited, methods with immediate patient feedback are used and family is included when feasible.

摘要

目的

我们旨在描述和分析 Smart Heart 研究中参与者及其照顾者的定量和定性反馈,该研究是一项针对超重或肥胖合并先天性心脏病儿童的为期 12 个月的成功生活方式干预措施,提供远程生活方式咨询,以改善未来针对儿童的生活方式干预措施。

方法

在干预结束时,使用标准的项目评估问卷对 36 名参与者及其照顾者进行了调查。将反馈意见归纳为主题,并确定了项目成功的促进因素和障碍。

结果

参与者及其照顾者对干预措施和工作人员的互动非常满意,且参与的负担感较低。同时也存在一些具体的问题,包括对技术使用的印象不一以及实际行为改变的影响程度不明显。

结论

本研究从 Smart Heart 干预反馈中确定了五个主题,以及参与者依从性的相应促进因素和障碍,并为改善未来针对儿童的生活方式行为干预研究设计提供了建议。

实践意义

远程智能手机咨询是有效且高效的。建议咨询信息具体、咨询计划以患者为中心、患者负担有限、使用具有即时患者反馈的方法,并在可行的情况下纳入家庭。

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