The Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Postboks 4959 Nydalen, 0424 Oslo, Norway; Center of diakonia, values and professional practice, VID Specialized University, Postboks 184 Vinderen, 0319 Oslo, Norway.
Faculty of Health Studies, VID Specialized University, Postboks 184 Vinderen, 0319 Oslo, Norway.
Patient Educ Couns. 2020 Aug;103(8):1453-1466. doi: 10.1016/j.pec.2020.02.028. Epub 2020 Feb 20.
Patient participation represents a worldwide policy, but its impact lacks research. This study investigates impact of patient participation in health-service development by providing a comprehensive overview of how the literature describes it.
A scoping review with a broad search strategy was conducted. The literature was examined for study characteristics, purpose for, approaches to and impact of patient participation. The data were analyzed using a thematic analysis.
The 34 included primary studies reported impacts of patient participation that were interpreted to constitute two categories: 1. The participatory process´ impact on involved patient representatives and health professionals, and the organization´s patient participation practice itself. 2. The participatory service development´s impact on the design and delivery of services regarding patients and health professionals, and the organization.
The literature describes a broad variation of impacts from health-service development, relevant for health professionals and patient representatives when initiating or participating in such processes. Our review provides an overview and discussion of these types of impact.
The findings can be of practical relevance to those aiming to develop services, quality indicators regarding effects of patient participation, or to further investigate aspects of participatory service development.
患者参与代表了一项全球性政策，但它的影响缺乏研究。本研究通过全面概述文献如何描述它，调查患者参与卫生服务发展的影响。
采用广泛的搜索策略进行范围界定审查。对文献进行了研究特征、目的、方法以及患者参与的影响的研究。使用主题分析对数据进行分析。
34 项纳入的主要研究报告了患者参与的影响，这些影响被解释为构成两个类别：1. 参与过程对参与的患者代表和卫生专业人员以及组织的患者参与实践本身的影响。2. 参与式服务发展对服务设计和提供对患者和卫生专业人员以及组织的影响。
文献描述了来自卫生服务发展的广泛的影响，对于那些在发起或参与此类过程的卫生专业人员和患者代表具有实际意义。我们的综述提供了对这些类型影响的概述和讨论。
研究结果对于那些旨在开发服务、关于患者参与效果的质量指标，或者进一步调查参与式服务发展方面的人具有实际意义。
