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Health Res Policy Syst. 2021 Jan 20;19(1):8. doi: 10.1186/s12961-020-00644-3.
3
Beneficial self-management support and user involvement in Healthy Life Centres-A qualitative interview study in persons afflicted by overweight or obesity.有益的自我管理支持和用户参与健康生活中心 - 超重或肥胖人群的定性访谈研究。
Health Expect. 2020 Oct;23(5):1376-1386. doi: 10.1111/hex.13129. Epub 2020 Aug 30.
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Patient Educ Couns. 2020 Aug;103(8):1453-1466. doi: 10.1016/j.pec.2020.02.028. Epub 2020 Feb 20.
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6
"Patient participation" and related concepts: A scoping review on their dimensional composition.“患者参与”及相关概念:对其维度构成的范围综述。
Patient Educ Couns. 2020 Jan;103(1):5-14. doi: 10.1016/j.pec.2019.08.001. Epub 2019 Aug 8.
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Chronic Illn. 2021 Sep;17(3):242-256. doi: 10.1177/1742395319869437. Epub 2019 Aug 19.
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Respect, trust and continuity: A qualitative study exploring service users' experience of involvement at a Healthy Life Centre in Norway.尊重、信任和延续性:一项在挪威健康生活中心探索服务使用者参与体验的定性研究。
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在挪威健康生活中心的医疗保健组织层面上让服务使用者代表参与:一项探索健康专业人员经验的定性研究。

Involvement of service user representatives on a healthcare organizational level at Norwegian Healthy Life Centres: A qualitative study exploring health professionals' experiences.

机构信息

Department of Public Health and Nursing, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway.

Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU) Central Norway, Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway.

出版信息

PLoS One. 2023 Aug 3;18(8):e0289544. doi: 10.1371/journal.pone.0289544. eCollection 2023.

DOI:10.1371/journal.pone.0289544
PMID:37535594
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10399866/
Abstract

BACKGROUND

The involvement of service user representatives in planning, delivering, and evaluating health care services is regarded as essential in Healthy Life Centres (HLCs) to ensure high-quality services. However, information on how HLC-professionals involve service user representatives at a healthcare organizational level at HLCs remains sparse.

OBJECTIVE

To explore HLC professionals' experiences involving service user representatives in planning, delivering, and evaluating the HLC services.

METHODS

Five qualitative semi-structured focus group interviews with 27 health professionals from 27 Norwegian HLCs were conducted. Data were analysed using systematic text condensation.

RESULTS

The involvement of service user representatives at the HLCs varied from well-integrated and systematized to the opposite. The professionals' primary rationale for involving service user representatives was to include the representatives' unique experiential knowledge to ensure the quality of the service. Experiential knowledge was seen as a 'different' competence, which came in addition to professional competence. The professionals' choice of service user representatives depended on the purpose behind the involvement initiative. The HLC professionals often hand-picked former service users according to their health problems, motivation, and the HLC's need. The professionals said they were responsible for initiating the facilitation to accomplish genuine involvement. Support from their leaders to prioritize these tasks was essential.

CONCLUSION

To meet the demand for adequate service user representatives, the HLCs need access to different service user representatives, representing both diagnose-based and generic service user organisations and the public. To achieve genuine involvement, the rationale behind the involvement and the representatives' role must be clarified, both for the HLC professionals and service user representatives. This will require resources for continuous organizational preparation and facilitation.

摘要

背景

在健康生活中心(HLC)中,让服务使用者代表参与规划、提供和评估医疗保健服务被认为是至关重要的,以确保高质量的服务。然而,关于 HLC 专业人员如何在 HLC 层面上在医疗保健组织层面上让服务使用者代表参与的信息仍然很少。

目的

探讨 HLC 专业人员在规划、提供和评估 HLC 服务中让服务使用者代表参与的经验。

方法

对来自 27 个挪威 HLC 的 27 名健康专业人员进行了 5 次定性半结构式焦点小组访谈。使用系统文本凝结法分析数据。

结果

HLC 中的服务使用者代表的参与程度从很好地融入和系统化到相反的情况都有。专业人员让服务使用者代表参与的主要理由是纳入代表独特的经验知识,以确保服务的质量。经验知识被视为一种“不同”的能力,除了专业能力之外。专业人员对服务使用者代表的选择取决于参与倡议背后的目的。HLC 专业人员通常根据他们的健康问题、动机和 HLC 的需求,挑选前服务使用者作为代表。专业人员表示,他们有责任主动促成真正的参与。他们的领导对优先考虑这些任务的支持至关重要。

结论

为了满足对足够数量的服务使用者代表的需求,HLC 需要能够获得不同的服务使用者代表,代表基于诊断的和通用的服务使用者组织以及公众。为了实现真正的参与,必须明确参与的理由和代表的角色,这不仅对 HLC 专业人员而且对服务使用者代表都很重要。这将需要资源来进行持续的组织准备和促进。