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儿童和青少年发育性协调障碍/运动障碍的生活体验:定性证据综合研究方案

Children and young people's experiences of living with developmental coordination disorder/dyspraxia: study protocol for a qualitative evidence synthesis.

作者信息

O'Dea Áine, Coote Susan, Robinson Katie

机构信息

School of Allied Health, University of Limerick, Castletroy, Limerick, Ireland.

Health Research Institute, University of Limerick, Castletroy, Limerick, Ireland.

出版信息

HRB Open Res. 2021 Jan 18;2:28. doi: 10.12688/hrbopenres.12958.4. eCollection 2019.

Abstract

Children with developmental coordination disorder (DCD) face significant challenges to deal with everyday activities due to underlying motor proficiency difficulties. These challenges affect children and young people's participation; that is, involvement in daily life situations. Recent years have seen a growing body of qualitative research examining children's experiences of living with DCD.  Meta-ethnographic synthesis offers a rigorous approach to bring together the findings of discrete qualitative studies to be synthesised in order to advance the conceptual understanding of living with DCD, which is not well conceptualised in the literature to date. Conducting a meta-ethnographic synthesis will help to illuminate the meaning of children and young people's experiences of DCD regarding their involvement in everyday activities and situations. This study aims to systematically review and synthesise qualitative literature regarding children and young people's experiences and views of everyday life and living with DCD. The method of qualitative evidence synthesis that will be followed in this review is a meta-ethnography. The eMERGe and PRISMA reporting guidelines will be adhered to. Ten databases will be searched; Academic Search Complete, AMED, CINAHL, ERIC, MEDLINE, PsychArticles, PsychInfo, EMBASE, SPORTDiscus, and Web of Science. The Joanna Briggs Institute Checklist will be used by two independent reviewers to appraise all included papers. PROSPERO registration number CRD42019129178 The findings of this meta-ethnography will endeavour to inform future research, policy and practice. In particular, the results will help to inform the design of future complex interventions to meet the needs of children and young people with DCD. Dissemination will involve the publication of the results in a peer-reviewed journal. Increasingly researchers and policymakers are calling for services to be informed by the perspective and voice of children with DCD. Therefore, a policy brief will be published so that the findings are widely available.

摘要

患有发育性协调障碍(DCD)的儿童由于潜在的运动能力困难,在应对日常活动时面临重大挑战。这些挑战影响儿童和青少年的参与度,即他们在日常生活中的参与情况。近年来,越来越多的定性研究探讨了患有DCD的儿童的生活经历。元民族志综合提供了一种严谨的方法,将离散的定性研究结果汇集在一起进行综合,以推进对患有DCD生活的概念理解,而这一概念在目前的文献中尚未得到很好的阐述。进行元民族志综合将有助于阐明儿童和青少年在参与日常活动和情境方面对DCD的体验的意义。本研究旨在系统回顾和综合关于儿童和青少年日常生活经历以及与DCD共存的定性文献。本综述将采用的定性证据综合方法是元民族志。将遵循eMERGe和PRISMA报告指南。将搜索十个数据库:学术搜索完整版、AMED、CINAHL、ERIC、MEDLINE、PsychArticles、PsychInfo、EMBASE、SPORTDiscus和科学网。两位独立评审员将使用乔安娜·布里格斯研究所清单对所有纳入的论文进行评估。PROSPERO注册号CRD42019129178 这项元民族志的研究结果将努力为未来的研究、政策和实践提供信息。特别是,研究结果将有助于为未来复杂干预措施的设计提供信息,以满足患有DCD的儿童和青少年的需求。传播将包括在同行评审期刊上发表研究结果。越来越多的研究人员和政策制定者呼吁服务要以患有DCD的儿童的观点和声音为依据。因此,将发布一份政策简报,以便广泛传播研究结果。

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