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本文引用的文献

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'I kind of figured it out': the views and experiences of people with traumatic brain injury (TBI) in using social media-self-determination for participation and inclusion online.“我有点弄明白了”:创伤性脑损伤(TBI)患者使用社交媒体的观点和体验——自决权促进在线参与和包容。
Int J Lang Commun Disord. 2019 Mar;54(2):221-233. doi: 10.1111/1460-6984.12405. Epub 2018 Jun 5.
2
The Differential Impact of Social Participation and Social Support on Psychological Well-Being: Evidence From the Wisconsin Longitudinal Study.社会参与和社会支持对心理健康的差异影响:来自威斯康星纵向研究的证据。
Int J Aging Hum Dev. 2019 Mar;88(2):107-126. doi: 10.1177/0091415018757213. Epub 2018 Mar 14.
3
Internet and Social Media Use After Traumatic Brain Injury: A Traumatic Brain Injury Model Systems Study.创伤性脑损伤后的互联网和社交媒体使用:一项创伤性脑损伤模型系统研究
J Head Trauma Rehabil. 2018 Jan/Feb;33(1):E9-E17. doi: 10.1097/HTR.0000000000000305.
4
Environmental barriers and social participation in individuals with spinal cord injury.脊髓损伤个体的环境障碍与社会参与
Rehabil Psychol. 2017 Feb;62(1):36-44. doi: 10.1037/rep0000117. Epub 2017 Jan 2.
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Smartphones as assistive technology following traumatic brain injury: a preliminary study of what helps and what hinders.智能手机作为创伤性脑损伤后的辅助技术:帮助和阻碍因素的初步研究。
Disabil Rehabil. 2017 Nov;39(23):2387-2394. doi: 10.1080/09638288.2016.1226434. Epub 2016 Oct 17.
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How Do Persons with Mild Acquired Cognitive Impairment Use Information and Communication Technology and E-Services? Results from a Swedish National Survey.轻度获得性认知障碍患者如何使用信息通信技术和电子服务?瑞典全国调查结果。
PLoS One. 2016 Jul 18;11(7):e0159362. doi: 10.1371/journal.pone.0159362. eCollection 2016.
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Digital Media Use and Social Engagement: How Social Media and Smartphone Use Influence Social Activities of College Students.数字媒体使用与社交参与:社交媒体和智能手机的使用如何影响大学生的社交活动。
Cyberpsychol Behav Soc Netw. 2016 Apr;19(4):264-9. doi: 10.1089/cyber.2015.0408. Epub 2016 Mar 18.
8
Facilitators and barriers to social and community participation following spinal cord injury.脊髓损伤后社会和社区参与的促进因素与障碍
Aust Occup Ther J. 2016 Feb;63(1):19-28. doi: 10.1111/1440-1630.12241. Epub 2015 Nov 4.
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"My World Has Expanded Even Though I'm Stuck at Home": Experiences of Individuals With Amyotrophic Lateral Sclerosis Who Use Augmentative and Alternative Communication and Social Media.“尽管被困家中,我的世界却得以扩展”:使用辅助和替代沟通方式及社交媒体的肌萎缩侧索硬化症患者的经历
Am J Speech Lang Pathol. 2015 Nov;24(4):680-95. doi: 10.1044/2015_AJSLP-15-0010.
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Social Media Use in Chronic Disease: A Systematic Review and Novel Taxonomy.社交媒体在慢性病中的应用:系统评价与新型分类法。
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社区参与与创伤性脑损伤成年人社会互联网使用之间的关系。

The Association Between Community Participation and Social Internet Use Among Adults With Traumatic Brain Injury.

机构信息

Research Department, Craig Hospital, Englewood, Colorado (Drs Ketchum and Whiteneck and Mr Sevigny); Traumatic Brain Injury Model Systems National Data and Statistical Center, Englewood, Colorado (Drs Ketchum and Whiteneck and Mr Sevigny); Moss Rehabilitation Research Institute, Elkins Park, Pennsylvania (Dr Hart); Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Boston, Massachusetts (O'Neil-Pirozzi); Department of Communication Sciences and Disorders, Northeastern University, Boston, Massachusetts (O'Neil-Pirozzi); H. Ben Taub Department of Physical Medicine and Rehabilitation, Baylor College of Medicine and Harris Health System, Houston, Texas (Dr Sander); Brain Injury Research Center, TIRR Memorial Hermann, Houston, Texas (Dr Sander); Department of Physical Medicine and Rehabilitation, University of Texas Southwestern Medical Center, Dallas, Texas (Dr Juengst); Department of Psychiatry and Psychology, Mayo Clinic, Rochester, Minnesota (Dr Bergquist); and Departments of Ophthalmology & Visual Sciences and Physical Medicine & Rehabilitation, The University of Alabama at Birmingham (Dr Dreer).

出版信息

J Head Trauma Rehabil. 2020 Jul/Aug;35(4):254-261. doi: 10.1097/HTR.0000000000000566.

DOI:10.1097/HTR.0000000000000566
PMID:32108716
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8594140/
Abstract

OBJECTIVE

To examine the association between social Internet use and real-world societal participation in survivors of moderate-severe traumatic brain injury.

DESIGN

Prospective cross-sectional observational study.

SETTING

Ten Traumatic Brain Injury Model Systems Centers.

PARTICIPANTS

A total of 331 participants in the Traumatic Brain Injury Model Systems, interviewed at any follow-up year between April 2014 and March 2015.

MAIN MEASURES

Survey on Internet use, including social media and other online socialization; Participation Assessment with Recombined Tools-Objective with separate analyses of Productivity, Social Relations, Out and About subscales; covariates included demographics, injury variables, and functional and emotional status at follow-up.

RESULTS

Participants were classified as social Internet users (N = 232) or nonusers (N = 99). Users had significantly higher Participation Assessment with Recombined Tools-Objective Social Relations scores than nonusers. A similar finding pertained to Out and About scores, with the between-group difference significantly greater for those with greater depressive symptoms severity. Users and nonusers did not differ significantly on Productivity subscale.

CONCLUSIONS

The positive association between social Internet use and real-world social participation suggests that people with traumatic brain injury do not use social media as an alternative to real-world socialization. Rather, it is likely that similar barriers and facilitators affect both online and real-world social participation following traumatic brain injury. Emotional function should be considered as a moderating factor in further studies.

摘要

目的

研究社会互联网使用与中重度创伤性脑损伤幸存者现实社会参与之间的关联。

设计

前瞻性横断面观察性研究。

地点

十个创伤性脑损伤模型系统中心。

参与者

共 331 名创伤性脑损伤模型系统参与者,于 2014 年 4 月至 2015 年 3 月间在随访的任何一年进行访谈。

主要措施

互联网使用情况调查,包括社交媒体和其他在线社交;使用重组工具进行参与评估-分别对生产力、社会关系、外出和外出活动子量表进行分析;协变量包括人口统计学、损伤变量以及随访时的功能和情绪状态。

结果

参与者分为社会互联网使用者(N=232)和非使用者(N=99)。使用者的参与评估与重组工具-客观社会关系得分显著高于非使用者。同样的发现适用于外出活动得分,且具有更严重抑郁症状严重程度的组间差异更大。在生产力子量表上,使用者和非使用者之间没有显著差异。

结论

社会互联网使用与现实社会参与之间的正相关表明,创伤性脑损伤患者并未将社交媒体作为现实社交的替代方式。相反,在创伤性脑损伤后,相似的障碍和促进因素可能同时影响在线和现实世界的社会参与。在进一步的研究中,应考虑情绪功能作为调节因素。