Skilton Andrew M, Low Leslie G, Dimaras Helen
NIHR Biomedical Research Center, Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology, London, UK.
NIHR Clinical Research Network Coordinating Center, London, UK.
Ophthalmol Ther. 2020 Jun;9(2):207-213. doi: 10.1007/s40123-020-00237-x. Epub 2020 Feb 29.
Discussion of the positive impact on research and mutual benefit that arises through genuine researcher and expert by experience collaboration has been noticeably absent from global sight loss and vision conferences. This article is co-authored by a parent advocate whose children have bilateral retinoblastoma, an eye health researcher and a practitioner in patient and public involvement in research who came together at the 2019 annual meeting of the Association for Research in Vision and Ophthalmology to share their first-hand experiences. The aim of this commentary is to highlight good practice and encourage colleagues to pursue steps towards a more engaged ophthalmology research landscape globally.
在全球视力丧失和眼科会议上，对于真正的研究人员与经验丰富的专家合作所产生的对研究的积极影响和互利共赢的讨论明显缺失。本文由一位子女患有双侧视网膜母细胞瘤的家长倡导者、一位眼健康研究人员以及一位从事患者和公众参与研究工作的从业者共同撰写，他们在2019年视觉与眼科研究协会年会上相聚，分享了他们的第一手经验。本评论的目的是突出良好实践，并鼓励同行采取措施，在全球范围内营造更具参与性的眼科研究环境。
