J Christ Nurs. 2020 Apr/Jun;37(2):88-93. doi: 10.1097/CNJ.0000000000000710.
This research study aimed to describe preferences about factors related to receiving information regarding medical treatments and palliative care (PC) options for adult patients with a poor prognosis and/or their primary decision maker. A single-group descriptive study design and content analysis were utilized. Seven trained registered nurse (RN) study team members conducted interviews to obtain narrative data. All study participants preferred to learn PC services earlier in the illness trajectory and desired to learn about this service from nurses. Most reported a desire to have spouses and family involved in decisions about PC. Nearly all wanted to understand PC options ahead of time should treatment not go as planned.
本研究旨在描述成年预后不良患者及其主要决策者对与接受医疗治疗和姑息治疗(PC)相关信息相关因素的偏好。采用单组描述性研究设计和内容分析。七名经过培训的注册护士(RN)研究团队成员进行了访谈以获取叙事数据。所有研究参与者都希望在疾病进程早期了解 PC 服务,并希望从护士那里了解这项服务。大多数人表示希望配偶和家人参与 PC 决策。几乎所有人都希望在治疗计划出现问题之前提前了解 PC 选项。