Palma Alejandra, Cartes Fernanda, González Marcela, Villarroel Luis, Parsons Henrique Afonseca, Yennurajalingam Sriram, Bruera Eduardo
Rev Med Chil. 2014 Jan;142(1):48-54. doi: 10.4067/S0034-98872014000100008.
Information disclosure and decision making process are important steps in advanced cancer patients management; however, there is no research done in this area in Chile.
To know the preferences of patients with advanced cancer related to information disclosure and style of decision making process.
Prospective observational study with patients in the Palliative Care Unit of Sótero del Río Hospital, in Santiago, Chile. The preferences were evaluated with a Disclosure Information and a Decision Making Preferences Questionnaire.
100 patients were recruited, 52% males, average age 63 years; 90% wanted to receive complete information about diagnosis and 89% complete information about prognosis. The preferences related to decision making process style were: 60% shared, 27% passive and 13% active. The expressed satisfaction with the information received was 89% and 87% with the way decisions were actually made.
A majority of patients preferred to receive complete information about diagnosis and prognosis and to make shared decisions. The satisfaction with information disclosure and decision making process was very high. The data of this study supports the need of an adequate information disclosure and of exploring the individual preferences of our patients, with the goal of promoting an informed decision making process that respects the preferences of our patients.
信息披露和决策过程是晚期癌症患者管理中的重要步骤；然而，智利在这一领域尚未开展相关研究。
了解晚期癌症患者在信息披露和决策过程方式方面的偏好。
对智利圣地亚哥索特罗·德尔·里奥医院姑息治疗科的患者进行前瞻性观察研究。通过信息披露问卷和决策偏好问卷对偏好进行评估。
招募了100名患者，其中52%为男性，平均年龄63岁；90%的患者希望获得关于诊断的完整信息，89%希望获得关于预后的完整信息。在决策过程方式方面的偏好为：60%希望共同决策，27%希望被动决策，13%希望主动决策。对所获信息表示满意的患者占89%，对实际决策方式表示满意的患者占87%。
大多数患者倾向于获得关于诊断和预后的完整信息并进行共同决策。对信息披露和决策过程的满意度很高。本研究数据支持进行充分的信息披露并探索患者的个人偏好，以促进尊重患者偏好的明智决策过程。
