Division of Physical Therapy, Department of Rehabilitation Medicine, Emory University School of Medicine, Atlanta, GA, USA.
Byrdine F. Lewis School of Nursing, Georgia State University, Atlanta, GA, USA.
Top Stroke Rehabil. 2020 Dec;27(8):590-600. doi: 10.1080/10749357.2020.1738678. Epub 2020 Mar 12.
: The long-term consequences of stroke affect both the carepartner (CP) and stroke survivor (SS). Understanding the effects of informal caregiving that may influence the ability of the family to carry over therapeutic activities in the home environment is critical for family-centered care.: This study examined the relationship of CP and SS factors associated with CP depressive symptoms to gain insights into CP needs that may occur after formal rehabilitation therapy has ended for SS with upper extremity deficits.: This correlational study used baseline data of 32 dyads of family CP and SS with upper extremity impairment who had completed rehabilitation therapy and were enrolled in a pilot study of a web-based CP-integrated rehabilitation program. Data using standard questionnaires for CP factors and SS memory and behavior problems and an objective assessment of SS upper extremity function were obtained. Data analysis included descriptive statistics and Pearson product moment correlations.: CPs were female (62.5%), White (61.29%), and spouses (68.75%). CPs reported mild-moderate depressive symptoms ( = 9.5 ± 8.3), and a majority had some degree of family conflict. Higher CP depressive symptoms were related to worse life changes (r = -0.41, =.02), greater fatigue ( = 0.50, =.004), less effective family functioning (r = 0.46, =.01), less autonomy support to SS (r = -0.42, =.02), and more SS memory and behavior problems (r =0.45, =.01). Only CP fatigue was related to SS upper extremity function.: Negative impacts of caregiving were found in this group of relatively high physically functioning SS which may hinder CP from providing optimal support for SS. Addressing CP needs including education regarding depression, fatigue, SS memory, and behavior problems, and family functioning while SS is receiving rehabilitation therapy may be important considerations to help facilitate the CP to support the SS in carrying over therapeutic activities in the home environment.
: 中风的长期后果不仅影响到照顾者(CP)和中风幸存者(SS),还影响到家庭能否在家庭环境中继续进行治疗活动。了解可能影响家庭进行照顾的非正式照顾的影响对于以家庭为中心的护理至关重要。: 本研究调查了与 CP 抑郁症状相关的 CP 和 SS 因素之间的关系,以深入了解 CP 的需求,这些需求可能在 SS 完成上肢功能康复治疗后出现。: 这是一项相关性研究,纳入了 32 对完成康复治疗并参加基于网络的 CP 整合康复计划试点研究的上肢功能障碍的家庭 CP 和 SS 患者。使用 CP 因素标准问卷、SS 记忆和行为问题问卷以及 SS 上肢功能客观评估收集数据。数据分析包括描述性统计和 Pearson 积差相关分析。: CP 为女性(62.5%)、白人(61.29%)和配偶(68.75%)。CP 报告有轻度至中度抑郁症状( = 9.5 ± 8.3),大多数家庭有一定程度的冲突。CP 抑郁症状越严重,生活变化越大(r = -0.41,p =.02),疲劳感越严重( = 0.50,p =.004),家庭功能越差(r = 0.46,p =.01),对 SS 的自主支持越少(r = -0.42,p =.02),SS 的记忆和行为问题越多(r = 0.45,p =.01)。只有 CP 的疲劳与 SS 的上肢功能有关。: 在这群身体功能相对较好的 SS 中,发现了照顾的负面影响,这可能会阻碍 CP 为 SS 提供最佳支持。在 SS 接受康复治疗时,解决 CP 的需求,包括对抑郁、疲劳、SS 记忆和行为问题以及家庭功能的教育,可能是帮助 CP 支持 SS 在家庭环境中继续进行治疗活动的重要考虑因素。