WellSpan York Hospital, 1001 S. George St., York, PA 17403, USA.
WellSpan Health, 1001 S. George St., York, York, PA 17403, USA.
Intensive Crit Care Nurs. 2020 Aug;59:102829. doi: 10.1016/j.iccn.2020.102829. Epub 2020 Mar 12.
To describe gender differences in health-related quality of life and characterise discharged patients' perceptions of follow-up needs after extracorporeal membrane oxygenation.
RESEARCH METHODOLOGY/DESIGN: A descriptive, comparative cross-sectional pilot design was used. Adult patients receiving extracorporeal membrane oxygenation discharged between January 1, 2016 and March 31, 2018 participated in telephone interviews.
A 580-bed community teaching hospital in south central Pennsylvania.
Health-related quality of life was measured with the Rand 36-item Short Form Health Survey. Open-ended questions identified post-discharge healthcare services and perceived follow-up needs.
Of 30 eligible patients, 24 completed a telephone interview. All health-related quality of life dimensions, except for role-emotional and mental health, were lower in post- extracorporeal membrane oxygenation patients at follow-up compared to national norms. Women scored lower than men in all health-related quality of life dimensions. The most frequent post-discharge services used were physical therapy (66.7%), rehabilitation (62.5%) and occupational therapy (54.2%). The need for coordination of care post-discharge was identified.
Given long-term sequelae of extracorporeal membrane oxygenation on health-related quality of life and gender differences in health-related quality of life outcomes, ongoing interdisciplinary follow-up is imperative to ensure comprehensive patient management across the continuum of care.
描述体外膜氧合后健康相关生活质量的性别差异，并描述出院患者对体外膜氧合后随访需求的看法。
研究方法/设计：采用描述性、对比性、横断面的初步设计。2016 年 1 月 1 日至 2018 年 3 月 31 日期间，接受体外膜氧合治疗并出院的成年患者参与了电话访谈。
宾夕法尼亚州中南部的一家 580 床社区教学医院。
采用 Rand 36 项简明健康调查问卷测量健康相关生活质量。开放式问题确定了出院后的医疗服务和感知的随访需求。
在 30 名符合条件的患者中，有 24 名完成了电话访谈。与全国正常值相比，体外膜氧合后患者的所有健康相关生活质量维度，除角色情感和心理健康外，均较低。女性在所有健康相关生活质量维度上的得分均低于男性。出院后最常使用的服务是物理治疗（66.7%）、康复（62.5%）和职业治疗（54.2%）。确定了出院后需要协调护理。
鉴于体外膜氧合对健康相关生活质量的长期影响以及健康相关生活质量结果的性别差异，需要进行持续的跨学科随访，以确保在整个护理连续体中对患者进行全面管理。
