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中东、北非和南亚的帕金森病:国际帕金森病和运动障碍学会中东工作组的共识。

Parkinson's Disease in the Middle East, North Africa, and South Asia: Consensus from the International Parkinson and Movement Disorder Society Task Force for the Middle East.

机构信息

Department of Rehabilitation Sciences, Faculty of Applied Medical Sciences, Jordan University of Science and Technology, Irbid, Jordan.

Department of Neurology, University of Pittsburgh, Pittsburgh, PA, USA.

出版信息

J Parkinsons Dis. 2020;10(2):729-741. doi: 10.3233/JPD-191751.

DOI:10.3233/JPD-191751
PMID:32176653
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8203232/
Abstract

BACKGROUND

Understanding the regional needs and available healthcare resources to treat Parkinson's disease (PD) is essential to plan appropriate future priorities. The International Parkinson and Movement Disorder Society (MDS) Task Force for the Middle East was established to raise awareness and promote education across the region on PD and other movement disorders. Broadly, the task force encompasses the countries of the Middle East but has included North Africa and South Asia as well (MENASA).

OBJECTIVE

To create a list of needs and priorities in the advancement of PD in MENASA countries based on consensuses generated by the MDS task force for the Middle East.

METHODS

A Strengths Weaknesses-Opportunities-Threats (SWOT) analysis was conducted by the task force members to generate consensus about PD care this region.

RESULTS

Eight overarching principles emerged for the consensus statement on current needs: more movement disorders specialists, multidisciplinary care, accurate epidemiologic data, educational programs, availability of drugs, and availability of more advanced therapy, enhanced health care resources and infrastructure, and greater levels of awareness within the general population and among health care professionals.

CONCLUSION

This pilot study sheds light on unmet needs for providing care to people with PD in the MENASA region. These data offer directions on priorities to increase awareness of PD, to develop better infrastructure for research and management of PD, to foster healthcare policy discussions for PD and to provide educational opportunities within these countries.

摘要

背景

了解中东地区治疗帕金森病 (PD) 的区域需求和现有医疗资源对于规划适当的未来重点至关重要。国际帕金森病和运动障碍协会 (MDS) 中东特别工作组旨在提高该地区对 PD 和其他运动障碍的认识并促进教育。该工作组广泛涵盖中东国家,但也包括北非和南亚国家(MENASA)。

目的

根据 MDS 中东特别工作组提出的共识,制定 MENASA 国家在 PD 领域的需求和重点清单。

方法

工作组成员进行了优势、劣势、机会和威胁 (SWOT) 分析,以就该地区的 PD 护理达成共识。

结果

八项总体原则出现在关于当前需求的共识声明中:更多的运动障碍专家、多学科护理、准确的流行病学数据、教育计划、药物可用性以及更先进的治疗方法可用性、增强医疗保健资源和基础设施,以及提高普通人群和医疗保健专业人员的意识水平。

结论

这项试点研究揭示了在 MENASA 地区为 PD 患者提供护理方面存在的未满足需求。这些数据为提高 PD 意识、为 PD 的研究和管理制定更好的基础设施、促进医疗保健政策讨论以及在这些国家提供教育机会提供了优先事项的方向。

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Global access to quality-assured medical products: the Oxford Statement and call to action.全球获取质量有保证的医疗产品:牛津声明与行动呼吁。
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Parkinson's disease in the Western Pacific Region.西太平洋地区的帕金森病。
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