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神经科医生对帕金森病患者管理挑战及缓解策略的看法:伊拉克的一项定性研究

Neurologists' perspectives on management challenges and mitigation strategies for Parkinson's disease patients: A qualitative study in Iraq.

作者信息

Ibrahim Mena Khalid, Mohammed Samer Imad, Al-Gawwam Gheyath Abd Ali Shallal

机构信息

Ministry of Health, Baghdad Al-karkh Health Directorate, Baghdad, Iraq.

Department of Clinical Pharmacy, College of Pharmacy, University of Baghdad, Baghdad, Iraq.

出版信息

PLoS One. 2025 Jun 26;20(6):e0326851. doi: 10.1371/journal.pone.0326851. eCollection 2025.

Abstract

BACKGROUND

Parkinson's disease (PD) is currently the fastest-growing neurological disorder in the world. Patients with PD face numerous challenges in managing their chronic condition, particularly in countries with scarce healthcare infrastructure.

OBJECTIVE

This qualitative study aimed to delve into neurologists' perspectives on challenges and gaps in the Iraqi healthcare system that influence the management of PD, as well as strategies to mitigate these obstacles.

METHOD

Semi-structured interviews were conducted with neurologists from five different Iraqi provinces, working in both hospitals and private neurology clinics, between November 2024 and January 2025. A thematic analysis approach was employed to identify the main challenges and gaps in the healthcare system, along with potential mitigation strategies for improving PD management in Iraq.

RESULTS

Fourteen neurologists participated in this study. Among them, 71.4% identified medication adherence as a major challenge, followed by motor symptoms (64.3%). Physical dependency due to motor impairment was the most reported limitation affecting daily life and disease management. Neurologists cited several factors influencing patients' knowledge, including educational background, depression or family support, were mentioned by neurologists. Significant gaps in the Iraqi healthcare system were noted, such as the lack of specialized abnormal movement disorders clinics, multidisciplinary collaboration, a universal healthcare system, insufficient public PD awareness, and the presence of unregulated pharmaceuticals in the market.

CONCLUSION

Addressing these challenges requires policy-driven reforms, enhanced regulatory oversight and the integration of multidisciplinary care frameworks to optimize the management of individuals with PD. Strengthening patient education and professional training programs could further raise public awareness and improve care quality. Future research should focus on evaluating the effects of these proposed interventions on clinical outcomes for PD patients and promoting more patient-centered care for individuals with PD in Iraq.

摘要

背景

帕金森病(PD)是目前世界上增长最快的神经系统疾病。帕金森病患者在管理其慢性病方面面临诸多挑战,尤其是在医疗保健基础设施匮乏的国家。

目的

本定性研究旨在深入探讨神经科医生对伊拉克医疗保健系统中影响帕金森病管理的挑战和差距的看法,以及减轻这些障碍的策略。

方法

2024年11月至2025年1月期间,对来自伊拉克五个不同省份、在医院和私立神经科诊所工作的神经科医生进行了半结构化访谈。采用主题分析方法来确定医疗保健系统中的主要挑战和差距,以及改善伊拉克帕金森病管理的潜在缓解策略。

结果

14名神经科医生参与了本研究。其中,71.4%的人认为药物依从性是一个主要挑战,其次是运动症状(64.3%)。运动障碍导致的身体依赖是影响日常生活和疾病管理的最常报告的限制因素。神经科医生提到了几个影响患者知识的因素,包括教育背景、抑郁或家庭支持。伊拉克医疗保健系统存在重大差距,例如缺乏专门的异常运动障碍诊所、多学科协作、全民医疗保健系统、公众对帕金森病的认识不足以及市场上存在不受监管的药品。

结论

应对这些挑战需要政策驱动的改革、加强监管监督以及整合多学科护理框架,以优化帕金森病患者的管理。加强患者教育和专业培训计划可以进一步提高公众意识并改善护理质量。未来的研究应侧重于评估这些提议的干预措施对帕金森病患者临床结果的影响,并在伊拉克促进以患者为中心的帕金森病患者护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8efa/12200708/373a9ba94b1b/pone.0326851.g001.jpg

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