Department of Respiratory Diseases, Aalborg University Hospital, Aalborg, Denmark.
Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
COPD. 2020 Apr;17(2):175-183. doi: 10.1080/15412555.2020.1736998. Epub 2020 Mar 17.
Little is known about chronic obstructive pulmonary disease (COPD) patients experience with home-based health treatments, which are currently rapidly evolving. A previous randomized controlled trial investigated the use of long-term oxygen enriched high flow nasal cannula (HFNC) treatment at home. The aim of this study was to explore COPD patients' experience using home HFNC treatment. Patients in this qualitative study were included from the previous RCT. All patients used long-term oxygen therapy and HFNC, the latter as a primarily nocturnal add-on. Data were collected using semi-structured interviews focused on four themes: 'Description of daily use', 'Experienced changes', 'Treatment benefits and disadvantages' and 'User-friendliness'. The interviewer played an encouraging, non-normative neutral facilitator role in order to give the participants possibility to explain themselves as fully as possible. Participants were recruited until themes were saturated. A total of 12 patients (5 males, 7 females) and 8 relatives participated. Six themes were identified as important to patient adherence: Perceived lower work of breathing; reduced symptoms; improved quality of sleep; increased activity of daily living; feeling safe; technology use. The results increase our knowledge of patient experience of using HFNC for home treatment, which improved the patients' experience through reducing symptoms and increase the activity of daily living. Furthermore, they substantiate the necessity of perceived usefulness and ease of use as important factors for adherence to treatment.
关于慢性阻塞性肺疾病（COPD）患者在家中进行基于健康的治疗的体验，目前知之甚少，而这些治疗方法正在迅速发展。先前的一项随机对照试验研究了在家中使用长期氧合高流量鼻导管（HFNC）治疗的情况。本研究旨在探讨 COPD 患者使用家庭 HFNC 治疗的体验。本研究中的患者来自先前的 RCT。所有患者均使用长期氧疗和 HFNC，后者主要作为夜间附加治疗。数据通过重点关注四个主题的半结构化访谈收集：“日常使用描述”、“体验到的变化”、“治疗的益处和缺点”和“用户友好性”。访谈者扮演鼓励性、非规范性的中立促进者角色，以使参与者尽可能充分地解释自己。在主题达到饱和之前，招募了参与者。共有 12 名患者（5 名男性，7 名女性）和 8 名亲属参加。确定了 6 个主题对患者坚持治疗很重要：感知呼吸做功降低；症状减轻；睡眠质量改善；日常生活活动增加；感到安全；技术使用。研究结果增加了我们对患者使用 HFNC 进行家庭治疗体验的了解，通过减轻症状和增加日常生活活动来改善患者的体验。此外，研究结果证实了感知有用性和易用性作为坚持治疗的重要因素的必要性。
