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A Web-Based Intervention for Relatives of People Experiencing Psychosis or Bipolar Disorder: Design Study Using a User-Centered Approach.一种针对精神病或双相情感障碍患者亲属的基于网络的干预措施:采用以用户为中心的方法进行设计研究
JMIR Ment Health. 2018 Dec 7;5(4):e11473. doi: 10.2196/11473.
2
Factors affecting implementation of digital health interventions for people with psychosis or bipolar disorder, and their family and friends: a systematic review.影响针对精神病或双相情感障碍患者及其家人和朋友的数字健康干预措施实施的因素:一项系统综述。
Lancet Psychiatry. 2019 Mar;6(3):257-266. doi: 10.1016/S2215-0366(18)30302-X. Epub 2018 Dec 3.
3
IMPlementation of A Relatives' Toolkit (IMPART study): an iterative case study to identify key factors impacting on the implementation of a web-based supported self-management intervention for relatives of people with psychosis or bipolar experiences in a National Health Service: a study protocol.实施亲属工具包(IMPART 研究):一项迭代案例研究,旨在确定影响国家卫生服务系统中精神分裂症或双相情感障碍患者亲属实施基于网络的支持性自我管理干预措施的关键因素:研究方案。
Implement Sci. 2017 Dec 28;12(1):152. doi: 10.1186/s13012-017-0687-4.
4
Beyond Adoption: A New Framework for Theorizing and Evaluating Nonadoption, Abandonment, and Challenges to the Scale-Up, Spread, and Sustainability of Health and Care Technologies.超越采用:一个用于理论化和评估健康与护理技术的未采用、废弃以及扩大规模、传播和可持续性挑战的新框架。
J Med Internet Res. 2017 Nov 1;19(11):e367. doi: 10.2196/jmir.8775.
5
Digital health technology for use in patients with serious mental illness: a systematic review of the literature.用于严重精神疾病患者的数字健康技术:文献系统综述
Med Devices (Auckl). 2017 Oct 4;10:237-251. doi: 10.2147/MDER.S144158. eCollection 2017.
6
Protocol for an online randomised controlled trial to evaluate the clinical and cost-effectiveness of a peer-supported self-management intervention for relatives of people with psychosis or bipolar disorder: Relatives Education And Coping Toolkit (REACT).一项在线随机对照试验的方案,旨在评估针对精神病或双相情感障碍患者亲属的同伴支持自我管理干预措施(亲属教育与应对工具包,REACT)的临床效果和成本效益。
BMJ Open. 2017 Jul 18;7(7):e016965. doi: 10.1136/bmjopen-2017-016965.
7
Accelerating Digital Mental Health Research From Early Design and Creation to Successful Implementation and Sustainment.加速数字心理健康研究,从早期设计与创建到成功实施与维持。
J Med Internet Res. 2017 May 10;19(5):e153. doi: 10.2196/jmir.7725.
8
Assessing Feasibility and Acceptability of Web-Based Enhanced Relapse Prevention for Bipolar Disorder (ERPonline): A Randomized Controlled Trial.评估基于网络的双相情感障碍强化预防复发疗法(ERPonline)的可行性和可接受性:一项随机对照试验。
J Med Internet Res. 2017 Mar 24;19(3):e85. doi: 10.2196/jmir.7008.
9
Standards for Reporting Implementation Studies (StaRI) Statement.报告实施研究的标准(StaRI)声明。
BMJ. 2017 Mar 6;356:i6795. doi: 10.1136/bmj.i6795.
10
E-therapies in England for stress, anxiety or depression: what is being used in the NHS? A survey of mental health services.英格兰用于治疗压力、焦虑或抑郁的电子疗法:国民保健服务体系中正在使用什么?一项心理健康服务调查。
BMJ Open. 2017 Jan 23;7(1):e014844. doi: 10.1136/bmjopen-2016-014844.

精神分裂症或双相障碍在线亲属工具包的实施(IMPART 研究):迭代多案例研究,以确定影响员工接受和使用的关键因素。

IMPlementation of An online Relatives' Toolkit for psychosis or bipolar (IMPART study): iterative multiple case study to identify key factors impacting on staff uptake and use.

机构信息

Division of Health Research, Lancaster University, Bailrigg Campus, Lancaster, LA1 4YW, UK.

Clinical Trials Research Centre, University of Liverpool, Liverpool, UK.

出版信息

BMC Health Serv Res. 2020 Mar 17;20(1):219. doi: 10.1186/s12913-020-5002-4.

DOI:10.1186/s12913-020-5002-4
PMID:32183787
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7077000/
Abstract

BACKGROUND

Despite the potential of digital health interventions to improve the delivery of psychoeducation to people with mental health problems and their relatives, and substantial investment in their development, there is little evidence of successful implementation into clinical practice. We report the first implementation study of a digital health intervention: Relatives Education And Coping Toolkit (REACT), into routine mental healthcare. Our main aim was to identify critical factors affecting staff uptake and use of this online self-management tool for relatives of people with psychosis or bipolar.

METHODS

A mixed-methods, theory-driven (Normalisation Process Theory), iterative multiple case study approach using qualitative analysis of interviews with staff and quantitative reporting of uptake. Carer researchers were part of the research team.

RESULTS

In all, 281 staff and 159 relatives from Early Intervention teams across six catchment areas (cases) in England registered on REACT; 129 staff took part in qualitative interviews. Staff were positive about REACT helping services improve support and meet clinical targets. Implementation was hindered by: high staff caseloads and difficulties prioritising carers; perception of REACT implementation as research; technical difficulties using REACT; poor interoperability with trust computer systems and care pathways; lack of access to mobile technology and training; restricted forum populations; staff fears of risk, online trolling, and replacement by technology; and uncertainty around REACT's long-term availability.

CONCLUSIONS

Digital health interventions, such as REACT, should be iteratively developed, evaluated, adapted and implemented, in partnership with the services they aim to support, and as part of a long term national strategy to co-develop integrated technology-enabled mental healthcare. Implementation strategies must instil a sense of ownership for staff and ensure they have adequate IT training, appropriate governance protocols for online working, and adequate mobile technologies. Wider contextual factors including adequate funding for mental health services and prioritisation of carer support, also need to be addressed for successful implementation of carer focussed digital interventions.

TRIAL REGISTRATION

Study registration: ISCTRN 16267685.

摘要

背景

尽管数字健康干预措施有可能改善心理健康问题患者及其家属的心理教育服务,并为其发展投入了大量资金,但将其成功实施到临床实践中的证据却很少。我们报告了一项数字健康干预措施的首次实施研究:亲属教育和应对工具包(REACT),将其纳入常规精神保健。我们的主要目的是确定影响工作人员接受和使用这种针对精神病或双相障碍患者亲属的在线自我管理工具的关键因素。

方法

采用混合方法、理论驱动(正常化进程理论)、迭代多案例研究方法,对工作人员的访谈进行定性分析,并对采用情况进行定量报告。照护者研究人员是研究团队的一部分。

结果

在英格兰六个服务区域(案例)的早期干预团队中,共有 281 名工作人员和 159 名亲属注册了 REACT;129 名工作人员参加了定性访谈。工作人员对 REACT 有助于服务提供支持并达到临床目标持积极态度。实施受到以下因素的阻碍:工作人员的工作量大,难以优先考虑照顾者;将 REACT 的实施视为研究;使用 REACT 存在技术困难;与信托计算机系统和护理途径的互操作性差;无法获得移动技术和培训;论坛人群受限;工作人员担心风险、网络骚扰和技术替代;以及对 REACT 的长期可用性存在不确定性。

结论

数字健康干预措施,如 REACT,应与他们旨在支持的服务合作,通过迭代开发、评估、调整和实施,并作为共同制定集成技术型精神保健的国家长期战略的一部分。实施策略必须使工作人员具有归属感,并确保他们接受足够的 IT 培训、在线工作的适当治理协议以及足够的移动技术。还需要解决更广泛的背景因素,包括为精神卫生服务提供足够的资金以及优先考虑照顾者支持,以成功实施以照顾者为中心的数字干预措施。

试验注册

研究注册:ISCTRN 16267685。