Pereira Edilene Vieira, Tonin Fernanda Stumpf, Carneiro Jaqueline, Pontarolo Roberto, Wiens Astrid
Departamento de Farmácia, Universidade Federal do Paraná, Curitiba, PR, Brasil.
Arch Endocrinol Metab. 2020 Feb;64(1):59-65. doi: 10.20945/2359-3997000000196. Epub 2020 Mar 13.
Objective Diabetes mellitus (DM) is a chronic disease with great impact on patients' quality of life (QoL). This variable can be measured using reliable, standardized, and validated instruments. The purpose of this study was to evaluate the application and reporting of the Diabetes Quality of Life Measure (DQOL) or the Diabetes Quality of Life for Youths Measure (DQOLY), an adapted version for young patients with DM. Materials and methods A systematic review of interventional and observational studies using the DQOL or DQOLY was performed. Searches were conducted in the electronic databases Medline, Scopus, Web of Science, Lilacs, and SciELO. Results After conducting the searches, 111 studies met the inclusion criteria and were included in the qualitative analysis. Of these, 32 studies were classified as interventional and 79 as observational, with 27,481 patients. The DQOL was applied in 82 studies, the DQOLY in another 27, and two studies used both instruments. DM was classified as type 1 DM in 69 studies and type 2 DM in 35 studies. Six studies included both patients. Improvement in patients' QoL after an intervention was observed in 13 interventional studies. Most of the studies (90%) provide a detailed description of the instrument and 52% the previous validation. The interpretation of the scores obtained varies among the studies, probably due to the differences inherent in cultural validations, translations, and adaptations. Conclusion The application of the instruments in clinical practice must be rigorously standardized and requires an accurate understanding of psychometric and statistical concepts. Arch Endocrinol Metab. 2020;64(1):59-65.
目的 糖尿病（DM）是一种对患者生活质量（QoL）有重大影响的慢性疾病。这个变量可以使用可靠、标准化且经过验证的工具来测量。本研究的目的是评估糖尿病生活质量量表（DQOL）或青少年糖尿病生活质量量表（DQOLY，DM 年轻患者的改编版本）的应用和报告情况。材料与方法 对使用 DQOL 或 DQOLY 的干预性和观察性研究进行系统评价。在电子数据库 Medline、Scopus、科学引文索引、拉丁美洲和加勒比卫生科学数据库以及科学电子图书馆在线中进行检索。结果 检索后，111 项研究符合纳入标准并纳入定性分析。其中，32 项研究被归类为干预性研究，79 项为观察性研究，涉及 27481 名患者。82 项研究应用了 DQOL，另外 27 项应用了 DQOLY，两项研究同时使用了这两种工具。69 项研究中的 DM 被分类为 1 型糖尿病，35 项研究中的 DM 被分类为 2 型糖尿病。六项研究纳入了两种患者。13 项干预性研究观察到干预后患者 QoL 有所改善。大多数研究（90%）对工具进行了详细描述，52%的研究进行了先前的验证。所获得分数的解释在各项研究中有所不同，这可能是由于文化验证、翻译和改编中固有的差异所致。结论 这些工具在临床实践中的应用必须严格标准化，并且需要对心理测量和统计概念有准确的理解。《巴西内分泌与代谢杂志》。2020 年；64(1):59 - 65。
