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婴幼儿捐赠背景下的死亡告知:器官和组织捐赠家庭访谈的最佳实践

Communication of Death in the Context of Infant-Child Donation: Best Practices for Creating Family Interview for Organ and Tissue Donation.

作者信息

da Silva Knihs Neide, Santos Juliana Dos, Schuantes Paim Sibele Maria, Pestana Magalhães Aline Lima, Erbs Pessoa João Luis, Ramos Saulo Fábio, Schirmer Janine, Bittencourt Ivonei, Albuquerque Bezerra Helen Cristine, Reis Bellaguarda Maria Lígia Dos, Lima da Silva Elza

机构信息

Federal University of Santa Catarina, Florianópolis, Santa Catarina, Brazil.

Federal University of Santa Catarina, Florianópolis, Santa Catarina, Brazil.

出版信息

Transplant Proc. 2020 Jun;52(5):1216-1222. doi: 10.1016/j.transproceed.2020.01.074. Epub 2020 Mar 19.

DOI:10.1016/j.transproceed.2020.01.074
PMID:32199644
Abstract

OBJECTIVE

To analyze evidence capable of supporting best practices available in the literature to create dialogues about organ and tissue donation with parents of deceased children and adolescents.

METHODS

An integrative literature review performed using Scopus, Cochrane, PsycINFO, PubMed/MEDLINE, Web of Science database, and SciELo electronic libraries from November of 2013 to November of 2018, using keyword syntax for each database. The categories were developed using the Alicante model.

RESULTS

A total of 745 articles were identified, with 7 selected for analysis. The information obtained was grouped into 3 categories: death communication, which indicates the importance of using simple and clear words; emotional support, which reveals the need to respect family time and the importance of empathy and compassion; and donation information, which punctuates the importance of dissociating communication about the death from that regarding organ donation.

CONCLUSIONS

Evidence shows that best practices are the use of simple language, respect for the family during the grieving process, and the importance of establishing different situations in which to communicate about the death and the donation process.

摘要

目的

分析文献中能够支持最佳实践的证据,以便与已故儿童和青少年的父母就器官和组织捐赠展开对话。

方法

于2013年11月至2018年11月期间,使用Scopus、Cochrane、PsycINFO、PubMed/MEDLINE、Web of Science数据库以及SciELo电子图书馆进行综合文献综述,针对每个数据库使用关键词语法。类别采用阿利坎特模型制定。

结果

共识别出745篇文章,其中7篇被选作分析之用。所获信息分为3类:死亡告知,表明使用简单明了语言的重要性;情感支持,揭示尊重家庭时间以及同理心和同情心的重要性;捐赠信息,强调将关于死亡的沟通与器官捐赠的沟通区分开来的重要性。

结论

证据表明,最佳实践包括使用简单语言、在悲伤过程中尊重家庭,以及在不同情境下就死亡和捐赠过程进行沟通的重要性。

相似文献

1
Communication of Death in the Context of Infant-Child Donation: Best Practices for Creating Family Interview for Organ and Tissue Donation.婴幼儿捐赠背景下的死亡告知:器官和组织捐赠家庭访谈的最佳实践
Transplant Proc. 2020 Jun;52(5):1216-1222. doi: 10.1016/j.transproceed.2020.01.074. Epub 2020 Mar 19.
2
How can nurses support relatives of a dying patient with the organ donation option?护士如何就器官捐赠选项为濒死患者的亲属提供支持?
Nurs Crit Care. 2016 Jul;21(4):214-24. doi: 10.1111/nicc.12183. Epub 2015 May 5.
3
Care bundle for family interview for pediatric organ donation.儿科器官捐献家庭访谈护理包。
J Pediatr Nurs. 2022 May-Jun;64:56-63. doi: 10.1016/j.pedn.2022.01.010. Epub 2022 Feb 10.
4
Organ Donation Following Neurologic and Circulatory Determination of Death.脑死亡和循环停止后的器官捐献。
Pediatr Crit Care Med. 2018 Aug;19(8S Suppl 2):S26-S32. doi: 10.1097/PCC.0000000000001518.
5
Requesting organ donation: an interview study of donor and nondonor families.请求器官捐赠:一项针对捐赠者和非捐赠者家庭的访谈研究。
Am J Crit Care. 1998 Jan;7(1):13-23.
6
Family Interview Evaluation for Organ Donation: Communication of Death and Information About Organ Donation.家庭访谈评估器官捐献:死亡沟通和器官捐献信息。
Transplant Proc. 2022 Jun;54(5):1202-1207. doi: 10.1016/j.transproceed.2022.02.064. Epub 2022 Jun 25.
7
Experiences of Families Following Organ Donation Consent: A Qualitative Systematic Review.器官捐赠同意后家庭的经历:一项定性系统综述
Transplant Proc. 2021 Mar;53(2):501-512. doi: 10.1016/j.transproceed.2020.09.016. Epub 2021 Jan 19.
8
Family bereavement: A case study of controlled organ donation after circulatory death.家庭丧亲:心脏死亡后控制器官捐献的案例研究。
Nurs Crit Care. 2019 Jul;24(4):229-234. doi: 10.1111/nicc.12436. Epub 2019 May 29.
9
There is an answer to the shortage of organ donors.器官捐献者短缺的问题有解决办法。
Surg Gynecol Obstet. 1991 Nov;173(5):391-6.
10
"Effective" Requesting: A Scoping Review of the Literature on Asking Families to Consent to Organ and Tissue Donation.“有效的”请求:关于请求家属同意器官和组织捐赠的文献综述
Transplantation. 2017 May;101(5S Suppl 1):S1-S16. doi: 10.1097/TP.0000000000001695.

引用本文的文献

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The bereavement experiences of families of potential organ donors: a qualitative longitudinal case study illuminating opportunities for family care.潜在器官捐献者家属的丧亲体验:一项定性纵向案例研究,阐明了家庭关怀的机会。
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2149100. doi: 10.1080/17482631.2022.2149100.
2
Procurement and Evaluation of Hepatocytes for Transplantation From Neonatal Donors After Circulatory Death.从循环死亡的新生儿供体中获取和评估肝细胞用于移植。
Cell Transplant. 2022 Jan-Dec;31:9636897211069900. doi: 10.1177/09636897211069900.