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本文引用的文献

1
Discussing reproductive goals with healthcare providers among women living with HIV in Canada: the role of provider gender and patient comfort.与加拿大 HIV 感染者的医疗保健提供者讨论生殖目标:提供者性别的作用和患者的舒适度。
Sex Reprod Health Matters. 2021 Dec;29(1):1932702. doi: 10.1080/26410397.2021.1932702.
2
Cohort profile: The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS).队列简介:加拿大艾滋病毒感染女性性与生殖健康队列研究(CHIWOS)。
PLoS One. 2017 Sep 28;12(9):e0184708. doi: 10.1371/journal.pone.0184708. eCollection 2017.
3
Transition Issues and Challenges for Youth with Autism Spectrum Disorders.自闭症谱系障碍青少年的过渡问题与挑战
Pediatr Ann. 2017 Jun 1;46(6):e219-e223. doi: 10.3928/19382359-20170519-03.
4
HIV healthcare transition outcomes among youth in North America and Europe: a review.北美和欧洲青少年的艾滋病毒医疗保健过渡结果:一项综述。
J Int AIDS Soc. 2017 May 16;20(Suppl 3):21490. doi: 10.7448/IAS.20.4.21490.
5
Validating a self-report measure of HIV viral suppression: an analysis of linked questionnaire and clinical data from the Canadian HIV Women's Sexual and Reproductive Health Cohort Study.验证一种关于HIV病毒抑制的自我报告测量方法:对来自加拿大HIV女性性与生殖健康队列研究的关联问卷和临床数据的分析。
BMC Res Notes. 2017 Mar 24;10(1):138. doi: 10.1186/s13104-017-2453-8.
6
Clinical Status of Adolescents with Perinatal HIV at Transfer to Adult Care in the UK/Ireland.英国/爱尔兰围产期感染艾滋病毒青少年转至成人护理时的临床状况
Clin Infect Dis. 2017 Apr 15;64(8):1105-1112. doi: 10.1093/cid/cix063.
7
Stigma Management Trajectories in Youth with Perinatally Acquired HIV and Their Families: A Qualitative Perspective.围产期感染艾滋病毒青年及其家庭的耻辱感管理轨迹:定性研究视角
AIDS Behav. 2017 Sep;21(9):2682-2692. doi: 10.1007/s10461-016-1667-4.
8
Establishing the Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS): Operationalizing Community-based Research in a Large National Quantitative Study.建立加拿大艾滋病毒感染女性性与生殖健康队列研究(CHIWOS):在一项大型全国性定量研究中实施基于社区的研究。
BMC Med Res Methodol. 2016 Aug 19;16(1):101. doi: 10.1186/s12874-016-0190-7.
9
Health outcomes and the transition experience of HIV-infected adolescents after transfer to adult care in Québec, Canada.加拿大魁北克省感染艾滋病毒的青少年转至成人护理后的健康状况及过渡经历。
BMC Pediatr. 2016 Jul 26;16:109. doi: 10.1186/s12887-016-0644-4.
10
The influence of gender and other patient characteristics on health care-seeking behaviour: a QUALICOPC study.性别及其他患者特征对寻求医疗行为的影响:一项QUALICOPC研究
BMC Fam Pract. 2016 Mar 31;17:38. doi: 10.1186/s12875-016-0440-0.

青少年女性 HIV 感染者向成人 HIV 护理的过渡。

Transition from Pediatric to Adult HIV Care for Young Women Living with HIV.

机构信息

Women's College Research Institute, Women's College Hospital, Toronto, Ontario, Canada.

Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

出版信息

J Int Assoc Provid AIDS Care. 2020 Jan-Dec;19:2325958220903574. doi: 10.1177/2325958220903574.

DOI:10.1177/2325958220903574
PMID:32207355
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7093690/
Abstract

Transitioning from pediatric to adult care is a complicated process for youth with chronic illnesses. This study elucidates the unique factors affecting transition preparedness and perception of adult HIV care among a cohort of young women with HIV. Between 2013 and 2015, 48 women with HIV, who had experience with pediatric HIV care, were enrolled in a large Canadian cohort study. Variables were self-reported during peer-administered surveys. Only 60% reported feeling prepared for transition. Having never had contact with child protection services ( = .049), never been in foster care ( = .011), never been in a group home ( = .036), reporting a higher current CD4 count ( = .033), and reporting a younger ideal age for transition ( = .041) were associated with transition preparedness. Eighty-four percent reported equivalent or better HIV care following transition. Correlates of equivalent/better care following transition included lower personal income ( = .023), higher CD4 count ( = .021), care by an adult infectious diseases specialist ( = .002), and transition preparedness ( = .005). Our findings highlight the importance of adequate transition preparation and its effect on perception of care following transition.

摘要

从儿科护理过渡到成人护理对患有慢性疾病的青少年来说是一个复杂的过程。本研究阐明了影响准备过渡和对接受成人 HIV 护理的看法的独特因素,研究对象为一组感染 HIV 的年轻女性。2013 年至 2015 年间,48 名曾接受过儿科 HIV 护理的 HIV 感染女性参加了一项大型加拿大队列研究。在由同伴管理的调查中,研究人员自行报告了变量。只有 60%的人表示对过渡做好了准备。从未与儿童保护服务部门接触过( =.049)、从未被寄养过( =.011)、从未住过集体宿舍( =.036)、报告当前 CD4 计数较高( =.033)以及报告理想的过渡年龄更年轻( =.041)与过渡准备相关。84%的人报告说,在过渡后接受的 HIV 护理同等或更好。过渡后接受同等/更好护理的相关性因素包括个人收入较低( =.023)、CD4 计数较高( =.021)、由成人传染病专家提供护理( =.002)和过渡准备情况良好( =.005)。我们的研究结果强调了充分准备过渡的重要性,以及它对过渡后护理认知的影响。