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围产期感染艾滋病毒青年及其家庭的耻辱感管理轨迹:定性研究视角

Stigma Management Trajectories in Youth with Perinatally Acquired HIV and Their Families: A Qualitative Perspective.

作者信息

Proulx-Boucher Karène, Fernet Mylène, Blais Martin, Lapointe Normand, Samson Johanne, Lévy Joseph J, Otis Joanne, Morin Guylaine, Thériault Jocelyne, Trottier Germain

机构信息

Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada.

Centre maternel et infantile sur le SIDA, Centre hospitalier universitaire Sainte-Justine, Montreal, Canada.

出版信息

AIDS Behav. 2017 Sep;21(9):2682-2692. doi: 10.1007/s10461-016-1667-4.

DOI:10.1007/s10461-016-1667-4
PMID:28058566
Abstract

This study explores how family, secrecy and silence contribute to the adoption of stigma management strategies among youth with perinatally acquired HIV (PAHIV). A qualitative method was used. Eighteen youths with PAHIV aged 13-22 years old took part in a semi-structured interview. An exploratory content analysis was performed. Analyses of interviews allowed identification of two HIV stigma management trajectories, both sensitive to the family context: [1] a consolidation of family ties, which contributes to solidarity in stigma management; and [2] a weakening or dissolution of family ties, which contributes to solitary stigma management strategy. Family conditions that support the children in their efforts to develop active stigma management strategies are described. Children likely to experience weakening or dissolution family ties must build strong bonds in the clinical environment and maintain these into adulthood so as to afford them the support they need.

摘要

本研究探讨了家庭、秘密和沉默如何促使围产期感染艾滋病毒(PAHIV)的青少年采取耻辱管理策略。研究采用了定性方法。18名年龄在13至22岁之间的围产期感染艾滋病毒的青少年参与了半结构化访谈。进行了探索性内容分析。对访谈的分析确定了两种艾滋病毒耻辱管理轨迹,两者都对家庭环境敏感:[1]家庭关系的巩固,这有助于在耻辱管理中形成团结;[2]家庭关系的削弱或解体,这有助于形成单独的耻辱管理策略。文中描述了支持儿童努力制定积极耻辱管理策略的家庭条件。可能经历家庭关系削弱或解体的儿童必须在临床环境中建立牢固的联系,并将这些联系维持到成年,以便为他们提供所需的支持。

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