Smith Joanna, Ali Parveen, Birks Yvonne, Curtis Penny, Fairbrother Hannah, Kirk Susan, Saltiel David, Thompson Jill, Swallow Veronica
School of Healthcare, University of Leeds, Leeds, UK.
University of Sheffield, Sheffield, UK.
J Adv Nurs. 2020 Aug;76(8):1911-1923. doi: 10.1111/jan.14367. Epub 2020 Apr 15.
The aim of this study was to summarize reviews of family-focused care interventions that support families with a family member with a long-term condition across the life course.
Umbrella review.
Medline (1946-2019), Cochrane Database of Systematic Reviews (2019), Database of Abstracts of Reviews of Effect and EMBASE (1947-2019), CINAHL (1981-2019), Health Technology Assessment Database (2019) and PsycInfo (1806-2019).
All authors independently undertook title/abstract screening, data extraction and quality appraisal on a cluster of papers, working in groups of two or three to reach a consensus. The AMSTAR tool was used to appraise the quality of the studies and descriptive syntheses were undertaken.
Fifteen reviews met the selection criteria. Overall family-focussed care and associated terms were poorly defined. Typically interventions were educational or psychological therapy/counselling with the goal of empowering individuals to manage their condition. There is some evidence that family-focused care interventions can improve clinical/biological health measures and self-care outcomes such as treatment adherence. Multicomponent psychosocial interventions that include cognitive-behavioural therapy, skills training, education and support and are focused on wider family members appear to improve family relationships and martial functioning.
Long-term conditions have an impact on individual and family health and well-being, yet the impact of family-focused care interventions on family outcomes was overall inconclusive. A better understanding of how family-focused care interventions improve the health and well-being of individuals and their families is needed to promote the inclusion of family-focused care into practice.
Supporting people with a long-term condition is a key health and social care priority. Family-focused care interventions have potential to improve the health and well-being of individuals and families, but there is a need to evaluate their clinical and cost-effectiveness. The findings from this review could be used by funding bodies when commissioning research for long-term conditions.
本研究旨在总结以家庭为中心的护理干预措施的综述，这些干预措施在整个生命历程中为有长期疾病家庭成员的家庭提供支持。
伞状综述。
医学文献数据库（1946 - 2019年）、考克兰系统评价数据库（2019年）、效果评价文摘数据库和EMBASE（1947 - 2019年）、护理学与健康领域数据库（1981 - 2019年）、卫生技术评估数据库（2019年）以及心理学文摘数据库（1806 - 2019年）。
所有作者独立进行标题/摘要筛选、数据提取以及对一组论文的质量评估，两人或三人一组开展工作以达成共识。使用AMSTAR工具评估研究质量并进行描述性综合分析。
十五篇综述符合入选标准。总体而言，以家庭为中心的护理及相关术语定义不明确。典型的干预措施是教育或心理治疗/咨询，目标是使个体有能力管理自身病情。有一些证据表明，以家庭为中心的护理干预措施可改善临床/生物健康指标以及自我护理结果，如治疗依从性。包括认知行为疗法、技能培训、教育与支持且针对更广泛家庭成员的多成分心理社会干预措施似乎可改善家庭关系和婚姻功能。
长期疾病会对个体和家庭的健康与幸福产生影响，但以家庭为中心的护理干预措施对家庭结局的影响总体尚无定论。需要更好地理解以家庭为中心的护理干预措施如何改善个体及其家庭的健康与幸福，以促进将以家庭为中心的护理纳入实践。
为患有长期疾病的人提供支持是卫生和社会护理的一项关键优先事项。以家庭为中心的护理干预措施有潜力改善个体和家庭的健康与幸福，但需要评估其临床和成本效益。本综述的结果可被资助机构在委托开展针对长期疾病的研究时使用。
