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儿科血液肿瘤学和干细胞移植人群中的健康差异、心理社会功能与健康结果之间的关系:临床护理建议。

The Relationship between Health Disparities, Psychosocial Functioning and Health Outcomes in Pediatric Hematology-Oncology and Stem Cell Transplant Populations: Recommendations for Clinical Care.

机构信息

Virginia Commonwealth University School of Medicine, 1201 E. Marshall St #4-100, Richmond, VA 23298, USA.

Children's Hospital of Richmond at Virginia Commonwealth University, Richmond, VA 23219, USA.

出版信息

Int J Environ Res Public Health. 2020 Mar 26;17(7):2218. doi: 10.3390/ijerph17072218.

Abstract

Not only do racial and ethnic minority children and adolescents with chronic illness experience disparities in health status and health outcomes, they also experience significant healthcare disparities, including differences in healthcare coverage, access to care, and quality of care. It is well known that the interaction between psychosocial functioning, health behaviors and ethnic and racial disparities, ultimately leads to worse health and psychosocial outcomes in pediatric and AYA chronic illness patient populations, including increased rates of morbidity and mortality. Investigating the impact of racial and ethnic factors on health outcomes, and strategies for reducing these disparities, is of the utmost importance, specifically in life-threatening conditions like cancer and sickle cell disease. This commentary underscores the relative importance of identifying factors that could reduce disparities between minority and non-minority populations. This present paper will focus on the dynamic relationships between health disparities, psychosocial factors and health outcomes within pediatric cancer, sickle cell disease and bone marrow transplant populations, and will offer recommendations for healthcare professionals working with these vulnerable patient populations. The primary goal of this commentary is to provide recommendations for enhancing cultural competency and humility for those working with highly vulnerable patient populations.

摘要

不仅患有慢性病的少数族裔儿童和青少年在健康状况和健康结果方面存在差异,他们还面临着显著的医疗保健差异,包括医疗保健覆盖范围、获得医疗服务的机会和医疗服务质量的差异。众所周知,心理社会功能、健康行为以及族裔和种族差异之间的相互作用,最终会导致儿科和青少年慢性病患者群体的健康和心理社会结果更差,包括发病率和死亡率的增加。研究种族和民族因素对健康结果的影响,以及减少这些差异的策略,至关重要,特别是在癌症和镰状细胞病等危及生命的疾病中。本评论强调了确定可能减少少数族裔和非少数族裔人群之间差异的因素的相对重要性。本论文将重点关注儿科癌症、镰状细胞病和骨髓移植患者群体中健康差异、心理社会因素和健康结果之间的动态关系,并为与这些弱势群体合作的医疗保健专业人员提供建议。本评论的主要目标是为与高度脆弱的患者群体合作的人员提供增强文化能力和谦逊的建议。

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